Bridging the Digital Divide in HIV Care

Background: Persons living with HIV (PLWH) need practical tools to self-manage their condition. Methods: We conducted a proof-of-concept study among PLWH to assess whether patients could learn to use a personal health record (PHR) on a hand-held device (iPod Touch) to manage their condition. We bega...

Full description

Bibliographic Details
Main Authors: Amneris E. Luque MD, Roberto Corales DO, Richard J. Fowler, Jamie DiMarco MSW, Adjuah van Keken MA, Paul Winters MS, Michael C. Keefer MD, Kevin Fiscella MD, MPH
Format: Article
Language:English
Published: SAGE Publishing 2013-03-01
Series:Journal of the International Association of Providers of AIDS Care
Online Access:https://doi.org/10.1177/1545109712457712
id doaj-824025a139ce4e0f9772466d71064372
record_format Article
spelling doaj-824025a139ce4e0f9772466d710643722020-11-25T03:28:47ZengSAGE PublishingJournal of the International Association of Providers of AIDS Care2325-95742325-95822013-03-011210.1177/1545109712457712Bridging the Digital Divide in HIV CareAmneris E. Luque MD0Roberto Corales DO1Richard J. Fowler2Jamie DiMarco MSW3Adjuah van Keken MA4Paul Winters MS5Michael C. Keefer MD6Kevin Fiscella MD, MPH7Department of Medicine, Infectious Disease Division, University of Rochester School of Medicine & Dentistry, Rochester, NY, USAAIDS Care, Rochester, NY, USAAIDS Care, Rochester, NY, USAUnity Health System, Unity Family Medicine, Rochester, NY, USADepartment of Family Medicine, Highland Hospital, University of Rochester Medical Center, NY, USADepartment of Family Medicine, Highland Hospital, University of Rochester Medical Center, NY, USADevelopmental Center for AIDS Research, University of Rochester School of Medicine & Dentistry, Rochester, NY, USADepartment of Family Medicine, Highland Hospital, University of Rochester Medical Center, NY, USABackground: Persons living with HIV (PLWH) need practical tools to self-manage their condition. Methods: We conducted a proof-of-concept study among PLWH to assess whether patients could learn to use a personal health record (PHR) on a hand-held device (iPod Touch) to manage their condition. We began individual trainings and later adapted this to group training. We assessed usability, acceptability and also effects on self-efficacy for treatment adherence using the HIV Treatment Adherence Self-Efficacy Scale (HIV-ASES). Results: Nine PLWH participated in the individual training and 29 participated in the group sessions. The participants were largely middle aged, low-income and of racial/ethnic minorities. The sessions were well attended and participants fully engaged in tasks and shared learning. Most participants stated they intended to use the PHR and reported improved self-efficacy in treatment adherence ( P = .05) particularly on the integration of treatment adherence into one's routine ( P < .02). Conclusions: Training PLWH in use of a handheld PHR shows promise.https://doi.org/10.1177/1545109712457712
collection DOAJ
language English
format Article
sources DOAJ
author Amneris E. Luque MD
Roberto Corales DO
Richard J. Fowler
Jamie DiMarco MSW
Adjuah van Keken MA
Paul Winters MS
Michael C. Keefer MD
Kevin Fiscella MD, MPH
spellingShingle Amneris E. Luque MD
Roberto Corales DO
Richard J. Fowler
Jamie DiMarco MSW
Adjuah van Keken MA
Paul Winters MS
Michael C. Keefer MD
Kevin Fiscella MD, MPH
Bridging the Digital Divide in HIV Care
Journal of the International Association of Providers of AIDS Care
author_facet Amneris E. Luque MD
Roberto Corales DO
Richard J. Fowler
Jamie DiMarco MSW
Adjuah van Keken MA
Paul Winters MS
Michael C. Keefer MD
Kevin Fiscella MD, MPH
author_sort Amneris E. Luque MD
title Bridging the Digital Divide in HIV Care
title_short Bridging the Digital Divide in HIV Care
title_full Bridging the Digital Divide in HIV Care
title_fullStr Bridging the Digital Divide in HIV Care
title_full_unstemmed Bridging the Digital Divide in HIV Care
title_sort bridging the digital divide in hiv care
publisher SAGE Publishing
series Journal of the International Association of Providers of AIDS Care
issn 2325-9574
2325-9582
publishDate 2013-03-01
description Background: Persons living with HIV (PLWH) need practical tools to self-manage their condition. Methods: We conducted a proof-of-concept study among PLWH to assess whether patients could learn to use a personal health record (PHR) on a hand-held device (iPod Touch) to manage their condition. We began individual trainings and later adapted this to group training. We assessed usability, acceptability and also effects on self-efficacy for treatment adherence using the HIV Treatment Adherence Self-Efficacy Scale (HIV-ASES). Results: Nine PLWH participated in the individual training and 29 participated in the group sessions. The participants were largely middle aged, low-income and of racial/ethnic minorities. The sessions were well attended and participants fully engaged in tasks and shared learning. Most participants stated they intended to use the PHR and reported improved self-efficacy in treatment adherence ( P = .05) particularly on the integration of treatment adherence into one's routine ( P < .02). Conclusions: Training PLWH in use of a handheld PHR shows promise.
url https://doi.org/10.1177/1545109712457712
work_keys_str_mv AT amneriseluquemd bridgingthedigitaldivideinhivcare
AT robertocoralesdo bridgingthedigitaldivideinhivcare
AT richardjfowler bridgingthedigitaldivideinhivcare
AT jamiedimarcomsw bridgingthedigitaldivideinhivcare
AT adjuahvankekenma bridgingthedigitaldivideinhivcare
AT paulwintersms bridgingthedigitaldivideinhivcare
AT michaelckeefermd bridgingthedigitaldivideinhivcare
AT kevinfiscellamdmph bridgingthedigitaldivideinhivcare
_version_ 1724582866020466688