Research‐ and health‐related youth advisory groups in Canada: An environmental scan with stakeholder interviews
Abstract Background Engaging youth throughout the research process improves research quality and outcomes. Youth advisory groups provide one way for youth to express their opinions on relevant issues. Objective This study aimed to identify research‐ and health‐related youth advisory groups (‘groups’...
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Online Access: | https://doi.org/10.1111/hex.13316 |
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doaj-80dd442d1cb243d7abd97e95fe9828152021-09-30T16:23:04ZengWileyHealth Expectations1369-65131369-76252021-10-012451763177910.1111/hex.13316Research‐ and health‐related youth advisory groups in Canada: An environmental scan with stakeholder interviewsMichelle Chan0Shannon D. Scott1Alyson Campbell2Sarah A. Elliott3Hannah Brooks4Lisa Hartling5Faculty of Nursing University of Alberta Edmonton Alberta CanadaFaculty of Nursing, ECHO Research University of Alberta Edmonton Alberta CanadaFaculty of Nursing University of Alberta Edmonton Alberta CanadaDepartment of Pediatrics, Faculty of Medicine and Dentistry, Alberta Research Centre for Health Evidence University of Alberta Edmonton Alberta CanadaFaculty of Nursing University of Alberta Edmonton Alberta CanadaDepartment of Pediatrics, Faculty of Medicine and Dentistry, Alberta Research Centre for Health Evidence University of Alberta Edmonton Alberta CanadaAbstract Background Engaging youth throughout the research process improves research quality and outcomes. Youth advisory groups provide one way for youth to express their opinions on relevant issues. Objective This study aimed to identify research‐ and health‐related youth advisory groups (‘groups’) in Canada and understand the best practices of these groups. Methods Google searches and supplementary methods were used to identify relevant groups in Canada. Group information was extracted from websites or through interviews with key informants. Results We identified 40 groups. Groups were commonly part of a hospital/healthcare facility, nonprofit/health organization or research group. The majority focused on a specific content area, most commonly, mental health. Over half the groups advised on health services. Members' ages ranged from 9 to 35 years. The number of members ranged from 5 to 130. Interviews (n = 12) identified seven categories relating to group practices: (a) group purpose/objectives, (b) group development, (c) group operations, (d) group structure, (e) adult involvement, (f) membership and recruitment and (g) group access. Challenges and facilitators to the success of groups were described within the following themes: (a) retaining engagement, (b) creating a safe environment and (c) putting youth in positions of influence. Advice and recommendations were provided regarding the development of a new group. Conclusion This study provides a comprehensive overview of research‐ and health‐related youth advisory groups in Canada. This information can be used to identify groups that stakeholders could access as well as inform the development of a new group. Patient or Public Contribution Youth advisory group representatives were interviewed as part of the study.https://doi.org/10.1111/hex.13316advisory groupengagementenvironmental scanhealthqualitative interviewsresearch |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Michelle Chan Shannon D. Scott Alyson Campbell Sarah A. Elliott Hannah Brooks Lisa Hartling |
spellingShingle |
Michelle Chan Shannon D. Scott Alyson Campbell Sarah A. Elliott Hannah Brooks Lisa Hartling Research‐ and health‐related youth advisory groups in Canada: An environmental scan with stakeholder interviews Health Expectations advisory group engagement environmental scan health qualitative interviews research |
author_facet |
Michelle Chan Shannon D. Scott Alyson Campbell Sarah A. Elliott Hannah Brooks Lisa Hartling |
author_sort |
Michelle Chan |
title |
Research‐ and health‐related youth advisory groups in Canada: An environmental scan with stakeholder interviews |
title_short |
Research‐ and health‐related youth advisory groups in Canada: An environmental scan with stakeholder interviews |
title_full |
Research‐ and health‐related youth advisory groups in Canada: An environmental scan with stakeholder interviews |
title_fullStr |
Research‐ and health‐related youth advisory groups in Canada: An environmental scan with stakeholder interviews |
title_full_unstemmed |
Research‐ and health‐related youth advisory groups in Canada: An environmental scan with stakeholder interviews |
title_sort |
research‐ and health‐related youth advisory groups in canada: an environmental scan with stakeholder interviews |
publisher |
Wiley |
series |
Health Expectations |
issn |
1369-6513 1369-7625 |
publishDate |
2021-10-01 |
description |
Abstract Background Engaging youth throughout the research process improves research quality and outcomes. Youth advisory groups provide one way for youth to express their opinions on relevant issues. Objective This study aimed to identify research‐ and health‐related youth advisory groups (‘groups’) in Canada and understand the best practices of these groups. Methods Google searches and supplementary methods were used to identify relevant groups in Canada. Group information was extracted from websites or through interviews with key informants. Results We identified 40 groups. Groups were commonly part of a hospital/healthcare facility, nonprofit/health organization or research group. The majority focused on a specific content area, most commonly, mental health. Over half the groups advised on health services. Members' ages ranged from 9 to 35 years. The number of members ranged from 5 to 130. Interviews (n = 12) identified seven categories relating to group practices: (a) group purpose/objectives, (b) group development, (c) group operations, (d) group structure, (e) adult involvement, (f) membership and recruitment and (g) group access. Challenges and facilitators to the success of groups were described within the following themes: (a) retaining engagement, (b) creating a safe environment and (c) putting youth in positions of influence. Advice and recommendations were provided regarding the development of a new group. Conclusion This study provides a comprehensive overview of research‐ and health‐related youth advisory groups in Canada. This information can be used to identify groups that stakeholders could access as well as inform the development of a new group. Patient or Public Contribution Youth advisory group representatives were interviewed as part of the study. |
topic |
advisory group engagement environmental scan health qualitative interviews research |
url |
https://doi.org/10.1111/hex.13316 |
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