The Research Fairness Initiative: Filling a critical gap in global research ethics [version 1; referees: 2 approved]

2017 marked the 70th anniversary of the Nuremberg Code. The ethics of research with human beings has been shaped by the simplicity of its core logic, i.e., that the voluntary consent of research participants is sacrosanct and, when given, creates profound obligations of care and respect on the part...

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Main Authors: James V. Lavery, Carel IJsselmuiden
Format: Article
Language:English
Published: F1000 Research Ltd 2018-11-01
Series:Gates Open Research
Online Access:https://gatesopenresearch.org/articles/2-58/v1
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spelling doaj-7ae1a9cfb10e48e29b09a803b089265a2020-11-25T04:01:57ZengF1000 Research LtdGates Open Research2572-47542018-11-01210.12688/gatesopenres.12884.113977The Research Fairness Initiative: Filling a critical gap in global research ethics [version 1; referees: 2 approved]James V. Lavery0Carel IJsselmuiden1Hubert Department of Global Health, Rollins School of Public Health and the Center for Ethics, Emory University, Atlanta, GA, 30322, USACouncil for Health Research for Development, Geneva, Switzerland2017 marked the 70th anniversary of the Nuremberg Code. The ethics of research with human beings has been shaped by the simplicity of its core logic, i.e., that the voluntary consent of research participants is sacrosanct and, when given, creates profound obligations of care and respect on the part of researchers. But there are other aspects of the global research enterprise that warrant more deliberate ethical scrutiny. One of these is the fairness of research collaborations and partnerships and the many practical challenges that make fair partnerships difficult to achieve. Corruption in governments and institutions, unequal access to research funding among researchers and research institutions, and enormous disparities in institutional capacity to support research partnerships are just some of the factors that present obstacles to fair partnerships between high income country (HIC) and low and middle income country (LMIC) partners, and within LMICs and HICs alike. Serious attention to these structural disparities, and the ways they shape the ethical character of the research enterprise, is long overdue. Achieving fairness in research partnerships is, in essence, a complex policy and management challenge. Against this backdrop, COHRED has developed and pilot-tested the Research Fairness Initiative (RFI) with several leading research institutions around the world. The RFI was designed as a tool for promoting self-reflection on, and public reporting of, institutional practices and policies related to research partnerships to create a continuous improvement process for research collaborations. Here, we report promising preliminary results of the RFI’s impact, including TDR-WHO’s recent publication of its first RFI report. The RFI provides a pragmatic strategy to explicitly address fairness in research partnerships as a fundamental requirement of the ethics of research.https://gatesopenresearch.org/articles/2-58/v1
collection DOAJ
language English
format Article
sources DOAJ
author James V. Lavery
Carel IJsselmuiden
spellingShingle James V. Lavery
Carel IJsselmuiden
The Research Fairness Initiative: Filling a critical gap in global research ethics [version 1; referees: 2 approved]
Gates Open Research
author_facet James V. Lavery
Carel IJsselmuiden
author_sort James V. Lavery
title The Research Fairness Initiative: Filling a critical gap in global research ethics [version 1; referees: 2 approved]
title_short The Research Fairness Initiative: Filling a critical gap in global research ethics [version 1; referees: 2 approved]
title_full The Research Fairness Initiative: Filling a critical gap in global research ethics [version 1; referees: 2 approved]
title_fullStr The Research Fairness Initiative: Filling a critical gap in global research ethics [version 1; referees: 2 approved]
title_full_unstemmed The Research Fairness Initiative: Filling a critical gap in global research ethics [version 1; referees: 2 approved]
title_sort research fairness initiative: filling a critical gap in global research ethics [version 1; referees: 2 approved]
publisher F1000 Research Ltd
series Gates Open Research
issn 2572-4754
publishDate 2018-11-01
description 2017 marked the 70th anniversary of the Nuremberg Code. The ethics of research with human beings has been shaped by the simplicity of its core logic, i.e., that the voluntary consent of research participants is sacrosanct and, when given, creates profound obligations of care and respect on the part of researchers. But there are other aspects of the global research enterprise that warrant more deliberate ethical scrutiny. One of these is the fairness of research collaborations and partnerships and the many practical challenges that make fair partnerships difficult to achieve. Corruption in governments and institutions, unequal access to research funding among researchers and research institutions, and enormous disparities in institutional capacity to support research partnerships are just some of the factors that present obstacles to fair partnerships between high income country (HIC) and low and middle income country (LMIC) partners, and within LMICs and HICs alike. Serious attention to these structural disparities, and the ways they shape the ethical character of the research enterprise, is long overdue. Achieving fairness in research partnerships is, in essence, a complex policy and management challenge. Against this backdrop, COHRED has developed and pilot-tested the Research Fairness Initiative (RFI) with several leading research institutions around the world. The RFI was designed as a tool for promoting self-reflection on, and public reporting of, institutional practices and policies related to research partnerships to create a continuous improvement process for research collaborations. Here, we report promising preliminary results of the RFI’s impact, including TDR-WHO’s recent publication of its first RFI report. The RFI provides a pragmatic strategy to explicitly address fairness in research partnerships as a fundamental requirement of the ethics of research.
url https://gatesopenresearch.org/articles/2-58/v1
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