Parent Perspectives on Short-Term Recovery After Spinal Fusion Surgery in Children With Neuromuscular Scoliosis

Family perspectives on short-term recovery after spinal fusion for neuromuscular scoliosis are essential for improving patient outcomes. Semistructured interviews were conducted with 18 families of children within 3 months after spinal fusion performed August 2017 to January 2019 at a children’s hos...

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Main Authors:	Brigid M Garrity MS, MPH, Sara J Singer PhD, MBA, Erin Ward MsEd, Lucia Bastianelli MSN, RN, CPNP, Jay G Berry MD, MPH, Charis Crofton BS, Laurie Glader MD, Elizabeth L Casto MPH, Joanne E Cox MD
Format:	Article
Language:	English
Published:	SAGE Publishing 2020-12-01
Series:	Journal of Patient Experience
Online Access:	https://doi.org/10.1177/2374373520972570

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spelling	doaj-748f491a0c4946c7bc1ac81bf149ca8a2021-01-05T00:36:22ZengSAGE PublishingJournal of Patient Experience2374-37352374-37432020-12-01710.1177/2374373520972570Parent Perspectives on Short-Term Recovery After Spinal Fusion Surgery in Children With Neuromuscular ScoliosisBrigid M Garrity MS, MPH0Sara J Singer PhD, MBA1Erin Ward MsEd2Lucia Bastianelli MSN, RN, CPNP3Jay G Berry MD, MPH4Charis Crofton BS5Laurie Glader MD6Elizabeth L Casto MPH7 Joanne E Cox MD8 Division of General Pediatrics, Boston Children’s Hospital, Boston, MA, USA Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA Division of General Pediatrics, Boston Children’s Hospital, Boston, MA, USA Cerebral Palsy and Spasticity Center, Boston Children’s Hospital, Boston, MA, USA Department of Pediatrics, Harvard Medical School, Boston, MA, USA Division of General Pediatrics, Boston Children’s Hospital, Boston, MA, USA Division of General Pediatrics, Boston Children’s Hospital, Boston, MA, USA Division of General Pediatrics, Boston Children’s Hospital, Boston, MA, USA Division of General Pediatrics, Boston Children’s Hospital, Boston, MA, USAFamily perspectives on short-term recovery after spinal fusion for neuromuscular scoliosis are essential for improving patient outcomes. Semistructured interviews were conducted with 18 families of children within 3 months after spinal fusion performed August 2017 to January 2019 at a children’s hospital. Interviews were recorded, transcribed, and coded line-by-line by 2 independent reviewers using grounded theory to identify themes. Five themes emerged among families when reflecting back on the postoperative recovery: (1) communicating and making shared decisions regarding postoperative care in a patient- and family-centered manner, (2) setting hospital discharge goals and being ready for discharge, (3) planning for transportation from hospital to home, (4) acquiring supports for caregiving at home after discharge, and (5) anticipating a long recovery at home. Important family perceptions were elicited about the recovery of children from spinal fusion for neuromuscular scoliosis that will inform better perioperative planning for clinicians, future patients, and their families.https://doi.org/10.1177/2374373520972570
collection	DOAJ
language	English
format	Article
sources	DOAJ
author	Brigid M Garrity MS, MPH Sara J Singer PhD, MBA Erin Ward MsEd Lucia Bastianelli MSN, RN, CPNP Jay G Berry MD, MPH Charis Crofton BS Laurie Glader MD Elizabeth L Casto MPH Joanne E Cox MD
spellingShingle	Brigid M Garrity MS, MPH Sara J Singer PhD, MBA Erin Ward MsEd Lucia Bastianelli MSN, RN, CPNP Jay G Berry MD, MPH Charis Crofton BS Laurie Glader MD Elizabeth L Casto MPH Joanne E Cox MD Parent Perspectives on Short-Term Recovery After Spinal Fusion Surgery in Children With Neuromuscular Scoliosis Journal of Patient Experience
author_facet	Brigid M Garrity MS, MPH Sara J Singer PhD, MBA Erin Ward MsEd Lucia Bastianelli MSN, RN, CPNP Jay G Berry MD, MPH Charis Crofton BS Laurie Glader MD Elizabeth L Casto MPH Joanne E Cox MD
author_sort	Brigid M Garrity MS, MPH
title	Parent Perspectives on Short-Term Recovery After Spinal Fusion Surgery in Children With Neuromuscular Scoliosis
title_short	Parent Perspectives on Short-Term Recovery After Spinal Fusion Surgery in Children With Neuromuscular Scoliosis
title_full	Parent Perspectives on Short-Term Recovery After Spinal Fusion Surgery in Children With Neuromuscular Scoliosis
title_fullStr	Parent Perspectives on Short-Term Recovery After Spinal Fusion Surgery in Children With Neuromuscular Scoliosis
title_full_unstemmed	Parent Perspectives on Short-Term Recovery After Spinal Fusion Surgery in Children With Neuromuscular Scoliosis
title_sort	parent perspectives on short-term recovery after spinal fusion surgery in children with neuromuscular scoliosis
publisher	SAGE Publishing
series	Journal of Patient Experience
issn	2374-3735 2374-3743
publishDate	2020-12-01
description	Family perspectives on short-term recovery after spinal fusion for neuromuscular scoliosis are essential for improving patient outcomes. Semistructured interviews were conducted with 18 families of children within 3 months after spinal fusion performed August 2017 to January 2019 at a children’s hospital. Interviews were recorded, transcribed, and coded line-by-line by 2 independent reviewers using grounded theory to identify themes. Five themes emerged among families when reflecting back on the postoperative recovery: (1) communicating and making shared decisions regarding postoperative care in a patient- and family-centered manner, (2) setting hospital discharge goals and being ready for discharge, (3) planning for transportation from hospital to home, (4) acquiring supports for caregiving at home after discharge, and (5) anticipating a long recovery at home. Important family perceptions were elicited about the recovery of children from spinal fusion for neuromuscular scoliosis that will inform better perioperative planning for clinicians, future patients, and their families.
url	https://doi.org/10.1177/2374373520972570
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Parent Perspectives on Short-Term Recovery After Spinal Fusion Surgery in Children With Neuromuscular Scoliosis

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