Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines

Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines

Abstract Epidermolysis Bullosa (EB) is a group of rare genetic disorders resulting in skin fragility and other symptoms. Commissioned by DEBRA International and funded by DEBRA Norway, this evidence-bases guideline provides recommendations to optimise psychosocial wellbeing in EB. An international m...

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Bibliographic Details
Main Authors: K. Martin, S. Geuens, J. K. Asche, R. Bodan, F. Browne, A. Downe, N. García García, G. Jaega, B. Kennedy, P. J. Mauritz, F. Pérez, K. Soon, V. Zmazek, K. M. Mayre-Chilton
Format: Article
Language:English
Published: BMC 2019-06-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Epidermolysis bullosa
Psychosocial
Guideline
Recommendations
Psychological
Social
Online Access:http://link.springer.com/article/10.1186/s13023-019-1086-5

Internet

http://link.springer.com/article/10.1186/s13023-019-1086-5

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