Standardization of Questions in Rare Disease Registries: The PRISM Library Project
BackgroundPatient registries are often a helpful first step in estimating the impact and understanding the etiology of rare diseases - both requisites for the development of new diagnostics and therapeutics. The value and utility of patient registries rely on the use of both...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
JMIR Publications
2012-10-01
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| Series: | Interactive Journal of Medical Research |
| Online Access: | http://www.i-jmr.org/2012/2/e10/ |