Negotiating the reuse of health-data: Research, Big Data, and the European General Data Protection Regulation

Before the EU General Data Protection Regulation entered into force in May 2018, we witnessed an intense struggle of actors associated with data-dependent fields of science, in particular health-related academia and biobanks striving for legal derogations for data reuse in research. These actors eng...

Full description

Bibliographic Details
Main Authors: Johannes Starkbaum, Ulrike Felt
Format: Article
Language:English
Published: SAGE Publishing 2019-07-01
Series:Big Data & Society
Online Access:https://doi.org/10.1177/2053951719862594