Challenges of Pediatric Disease in Adulthood

• Main Authors: Dennis J. Baumgardner, Brian Chicoine
• Format: Article
• Language: English
• Published: Aurora Health Care 2020-04-01
• Series: Journal of Patient-Centered Research and Reviews
• Subjects: childhood-onset chronic disease; congenital diseases; special health care needs; down syndrome; cystic fibrosis; congenital heart disease; hirschsprung disease
• Online Access: https://digitalrepository.aurorahealthcare.org/cgi/viewcontent.cgi?article=1756&context=jpcrr

Some chronic diseases — such as the rare bone disease X-linked hypophosphatemia, the impetus for a study reported within Volume 7, Issue 2 of the Journal of Patient-Centered Research and Reviews — are diagnosed in childhood but become more symptomatic in adulthood. In this editorial, the challenges, pitfalls, and opportunities regarding the care of adults with childhood-onset chronic diseases are examined using Down syndrome, cystic fibrosis, congenital heart disease, and Hirschsprung disease as examples.