Quality of Life in Late-Treated Patients With Disorders of Sex Development: Insights for Patient-Centered Care

Quality of Life in Late-Treated Patients With Disorders of Sex Development: Insights for Patient-Centered Care

Background: Patients with a disorder of sex development (DSD) are born with atypical genitals or may develop atypical genitals and atypical body appearance, if left untreated. Health related quality of life (HRQoL) was assessed in Indonesian patients to whom diagnostic procedures and medical interve...

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Bibliographic Details
Main Authors: Annastasia Ediati, Gijsbert H. W. Verrips, Achmad Zulfa Juniarto, Sultana M. H. Faradz, Stenvert L. S. Drop, Arianne B. Dessens
Format: Article
Language:English
Published: Frontiers Media S.A. 2019-01-01
Series:Frontiers in Pediatrics
Subjects:
disorders of sex development
quality of life
survey
questionnaires
observational study
Online Access:https://www.frontiersin.org/article/10.3389/fped.2018.00434/full

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