​ Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.

Background: Rheumatoid Arthritis (RA) is a chronic inflammatory disease that has a major impact on patients´ quality of life. The Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire is a patient-reported outcome measure, specific to RA. The aim of this study was to translate and perform the...

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Main Authors: Catia Duarte, Anabela Barcelos, João Lagoas Gomes, Jessica Stepanous, Jeanette Wilburn, Alice Heaney, Stephen P McKenna
Format: Article
Language:English
Published: Sociedade Portuguesa de Reumatologia 2018-04-01
Series:Acta Reumatológica Portuguesa
Subjects:
Online Access:http://www.actareumatologica.com/files/article/1206__cultural_adaptation_of_the_rheumatoid_arthritis_quality_of_life_raqol_for_portugal__file.pdf
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spelling doaj-627cb8b17bf447c69f7e77ed103c37992020-11-25T02:44:56ZengSociedade Portuguesa de ReumatologiaActa Reumatológica Portuguesa0303-464X2018-04-0120182132136AO180053​ Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.Catia Duarte0Anabela Barcelos1João Lagoas Gomes2Jessica StepanousJeanette WilburnAlice HeaneyStephen P McKennaCentro Hospitalar e Universitário de Coimbra, PortugalCentro Hospitalar Baixo Vouga, PortugalHospital de Egas Moniz - Centro Hospitalar Lisboa Ocidental,Background: Rheumatoid Arthritis (RA) is a chronic inflammatory disease that has a major impact on patients´ quality of life. The Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire is a patient-reported outcome measure, specific to RA. The aim of this study was to translate and perform the cross-cultural adaptation of the RAQoL into Portuguese. Material and Methods: The dual panel methodology was used to translate the UK RAQoL into Portuguese. This involved conducting a bilingual panel (providing the initial translation into Portuguese) followed by a lay panel (where items are assessed for comprehension and acceptability). Cognitive debriefing interviews were conducted with Portuguese RA patients to determine the face and content validity of the translated scale. Results: The translation panels produced a Portuguese version of the RAQoL that was easily understood and considered natural by native speakers. Twelve RA patients participated in the cognitive debriefing interviews. Patients considered the translated questionnaire to be clear, relevant and appropriate. Conclusion: The Portuguese version of the RAQoL was found to be comprehensible and demonstrated excellent face and content validity. Research examining the psychometric properties of this Portuguese version of the RAQoL is underway.http://www.actareumatologica.com/files/article/1206__cultural_adaptation_of_the_rheumatoid_arthritis_quality_of_life_raqol_for_portugal__file.pdfrheumatoid arthritisRAQoLDual-PannelQuality of Life
collection DOAJ
language English
format Article
sources DOAJ
author Catia Duarte
Anabela Barcelos
João Lagoas Gomes
Jessica Stepanous
Jeanette Wilburn
Alice Heaney
Stephen P McKenna
spellingShingle Catia Duarte
Anabela Barcelos
João Lagoas Gomes
Jessica Stepanous
Jeanette Wilburn
Alice Heaney
Stephen P McKenna
​ Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.
Acta Reumatológica Portuguesa
rheumatoid arthritis
RAQoL
Dual-Pannel
Quality of Life
author_facet Catia Duarte
Anabela Barcelos
João Lagoas Gomes
Jessica Stepanous
Jeanette Wilburn
Alice Heaney
Stephen P McKenna
author_sort Catia Duarte
title ​ Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.
title_short ​ Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.
title_full ​ Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.
title_fullStr ​ Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.
title_full_unstemmed ​ Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.
title_sort ​ cultural adaptation of the rheumatoid arthritis quality of life (raqol) for portugal.
publisher Sociedade Portuguesa de Reumatologia
series Acta Reumatológica Portuguesa
issn 0303-464X
publishDate 2018-04-01
description Background: Rheumatoid Arthritis (RA) is a chronic inflammatory disease that has a major impact on patients´ quality of life. The Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire is a patient-reported outcome measure, specific to RA. The aim of this study was to translate and perform the cross-cultural adaptation of the RAQoL into Portuguese. Material and Methods: The dual panel methodology was used to translate the UK RAQoL into Portuguese. This involved conducting a bilingual panel (providing the initial translation into Portuguese) followed by a lay panel (where items are assessed for comprehension and acceptability). Cognitive debriefing interviews were conducted with Portuguese RA patients to determine the face and content validity of the translated scale. Results: The translation panels produced a Portuguese version of the RAQoL that was easily understood and considered natural by native speakers. Twelve RA patients participated in the cognitive debriefing interviews. Patients considered the translated questionnaire to be clear, relevant and appropriate. Conclusion: The Portuguese version of the RAQoL was found to be comprehensible and demonstrated excellent face and content validity. Research examining the psychometric properties of this Portuguese version of the RAQoL is underway.
topic rheumatoid arthritis
RAQoL
Dual-Pannel
Quality of Life
url http://www.actareumatologica.com/files/article/1206__cultural_adaptation_of_the_rheumatoid_arthritis_quality_of_life_raqol_for_portugal__file.pdf
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