Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.
Background: Rheumatoid Arthritis (RA) is a chronic inflammatory disease that has a major impact on patients´ quality of life. The Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire is a patient-reported outcome measure, specific to RA. The aim of this study was to translate and perform the...
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Sociedade Portuguesa de Reumatologia
2018-04-01
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doaj-627cb8b17bf447c69f7e77ed103c37992020-11-25T02:44:56ZengSociedade Portuguesa de ReumatologiaActa Reumatológica Portuguesa0303-464X2018-04-0120182132136AO180053 Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal.Catia Duarte0Anabela Barcelos1João Lagoas Gomes2Jessica StepanousJeanette WilburnAlice HeaneyStephen P McKennaCentro Hospitalar e Universitário de Coimbra, PortugalCentro Hospitalar Baixo Vouga, PortugalHospital de Egas Moniz - Centro Hospitalar Lisboa Ocidental,Background: Rheumatoid Arthritis (RA) is a chronic inflammatory disease that has a major impact on patients´ quality of life. The Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire is a patient-reported outcome measure, specific to RA. The aim of this study was to translate and perform the cross-cultural adaptation of the RAQoL into Portuguese. Material and Methods: The dual panel methodology was used to translate the UK RAQoL into Portuguese. This involved conducting a bilingual panel (providing the initial translation into Portuguese) followed by a lay panel (where items are assessed for comprehension and acceptability). Cognitive debriefing interviews were conducted with Portuguese RA patients to determine the face and content validity of the translated scale. Results: The translation panels produced a Portuguese version of the RAQoL that was easily understood and considered natural by native speakers. Twelve RA patients participated in the cognitive debriefing interviews. Patients considered the translated questionnaire to be clear, relevant and appropriate. Conclusion: The Portuguese version of the RAQoL was found to be comprehensible and demonstrated excellent face and content validity. Research examining the psychometric properties of this Portuguese version of the RAQoL is underway.http://www.actareumatologica.com/files/article/1206__cultural_adaptation_of_the_rheumatoid_arthritis_quality_of_life_raqol_for_portugal__file.pdfrheumatoid arthritisRAQoLDual-PannelQuality of Life |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Catia Duarte Anabela Barcelos João Lagoas Gomes Jessica Stepanous Jeanette Wilburn Alice Heaney Stephen P McKenna |
spellingShingle |
Catia Duarte Anabela Barcelos João Lagoas Gomes Jessica Stepanous Jeanette Wilburn Alice Heaney Stephen P McKenna Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal. Acta Reumatológica Portuguesa rheumatoid arthritis RAQoL Dual-Pannel Quality of Life |
author_facet |
Catia Duarte Anabela Barcelos João Lagoas Gomes Jessica Stepanous Jeanette Wilburn Alice Heaney Stephen P McKenna |
author_sort |
Catia Duarte |
title |
Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal. |
title_short |
Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal. |
title_full |
Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal. |
title_fullStr |
Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal. |
title_full_unstemmed |
Cultural adaptation of the Rheumatoid Arthritis Quality of Life (RAQoL) for Portugal. |
title_sort |
cultural adaptation of the rheumatoid arthritis quality of life (raqol) for portugal. |
publisher |
Sociedade Portuguesa de Reumatologia |
series |
Acta Reumatológica Portuguesa |
issn |
0303-464X |
publishDate |
2018-04-01 |
description |
Background: Rheumatoid Arthritis (RA) is a chronic inflammatory disease that has a major impact on patients´ quality of life. The Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire is a patient-reported outcome measure, specific to RA. The aim of this study was to translate and perform the cross-cultural adaptation of the RAQoL into Portuguese.
Material and Methods: The dual panel methodology was used to translate the UK RAQoL into Portuguese. This involved conducting a bilingual panel (providing the initial translation into Portuguese) followed by a lay panel (where items are assessed for comprehension and acceptability). Cognitive debriefing interviews were conducted with Portuguese RA patients to determine the face and content validity of the translated scale.
Results: The translation panels produced a Portuguese version of the RAQoL that was easily understood and considered natural by native speakers. Twelve RA patients participated in the cognitive debriefing interviews. Patients considered the translated questionnaire to be clear, relevant and appropriate.
Conclusion: The Portuguese version of the RAQoL was found to be comprehensible and demonstrated excellent face and content validity. Research examining the psychometric properties of this Portuguese version of the RAQoL is underway. |
topic |
rheumatoid arthritis RAQoL Dual-Pannel Quality of Life |
url |
http://www.actareumatologica.com/files/article/1206__cultural_adaptation_of_the_rheumatoid_arthritis_quality_of_life_raqol_for_portugal__file.pdf |
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