Needs Assessment in Care of Adults With Anorectal Malformations and Exstrophy-Epispadias Complex in Germany

Needs Assessment in Care of Adults With Anorectal Malformations and Exstrophy-Epispadias Complex in Germany

Introduction: Medical needs of adults with anorectal malformations (ARM) and the exstrophy-epispadias complex (EEC) are not fully understood. Therefore, the aim of the study was to evaluate how affected individuals get along with the current national medical care and what their medical or social lon...

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Bibliographic Details
Main Authors: Anne Karoline Ebert, Nadine Zwink, Nicole Schwarzer, Lilian Brunner, Heiko Reutter, Ekkehart Jenetzky, Johannes Huber, Barbara Ludwikowski
Format: Article
Language:English
Published: Frontiers Media S.A. 2018-12-01
Series:Frontiers in Pediatrics
Subjects:
anorectal malformation (ARM)
exstrophy-epispadias complex (EEC)
health care
long-term quality of life issues
medical aftercare
Online Access:https://www.frontiersin.org/article/10.3389/fped.2018.00392/full

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