Cardiac donation after circulatory determination of death: protocol for a mixed-methods study of healthcare provider and public perceptions in Canada

Introduction Cardiac transplantation remains the best treatment for patients with end-stage heart disease that is refractory to medical or device therapies, however, a major challenge for heart transplantation is the persistent discrepancy between the number of patients on waiting lists and the numb...

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Main Authors: Jeanna Parsons Leigh, Marat Slessarev, Frédérick D'Aragon, Matthew Weiss, Kimia Honarmand, Robert Sibbald
Format: Article
Language:English
Published: BMJ Publishing Group 2020-07-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/10/7/e033932.full
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spelling doaj-4af58141895a4518a7b535f44be387aa2020-11-25T03:19:39ZengBMJ Publishing GroupBMJ Open2044-60552020-07-0110710.1136/bmjopen-2019-033932Cardiac donation after circulatory determination of death: protocol for a mixed-methods study of healthcare provider and public perceptions in CanadaJeanna Parsons Leigh0Marat Slessarev1Frédérick D'Aragon2Matthew Weiss3Kimia Honarmand4Robert Sibbald5School of Health Administration, Dalhousie University, Halifax, Nova Scotia, Canada8 Medicine, Division of Geriatric Medicine, Western University, London, Ontario, Canada Department of Anesthesiology, Universite de Sherbrooke Faculte de Medecine et des Sciences de la Sante, Sherbrooke, Québec, CanadaPopulation Health and Optimal Health Practices Research Unit, Trauma-Emergency-Critical Care Medicine, CHU de Quebec-Universite Laval, Quebec city, Quebec, CanadaDepartment of Medicine, Western University, London, Ontario, CanadaDepartment of Family Medicine, Western University, London, Ontario, CanadaIntroduction Cardiac transplantation remains the best treatment for patients with end-stage heart disease that is refractory to medical or device therapies, however, a major challenge for heart transplantation is the persistent discrepancy between the number of patients on waiting lists and the number of available hearts. While other countries (eg, UK, Australia and Belgium) have explored and implemented alternative models of transplantation, such as cardiac donation after circulatory determination of death (DCDD) to alleviate transplantation wait times, ethical concerns have hindered implementation in some countries. This study aims to explore the attitudes and opinions of healthcare providers and the public about cardiac DCDD in order to identify and describe opportunities and challenges in ensuring that proposed cardiac DCDD procedures in Canada are consistent with Canadian values and ethical norms.Methods and analysis This study will include two parts that will be conducted concurrently. Part 1 is a qualitative study consisting of semi-structured interviews with Canadian healthcare providers who routinely care for organ donors and/or transplant recipients to describe their perceptions about cardiac DCDD. Part 2 is a convergent parallel mixed-methods design consisting of a series of focus groups and follow-up surveys with members of the Canadian general public to describe their perceptions about cardiac DCDD.Ethics and dissemination This study has been approved by the Research Ethics Board at Western University. The findings will be presented at regional and national conferences and reported in peer-reviewed publications.https://bmjopen.bmj.com/content/10/7/e033932.full
collection DOAJ
language English
format Article
sources DOAJ
author Jeanna Parsons Leigh
Marat Slessarev
Frédérick D'Aragon
Matthew Weiss
Kimia Honarmand
Robert Sibbald
spellingShingle Jeanna Parsons Leigh
Marat Slessarev
Frédérick D'Aragon
Matthew Weiss
Kimia Honarmand
Robert Sibbald
Cardiac donation after circulatory determination of death: protocol for a mixed-methods study of healthcare provider and public perceptions in Canada
BMJ Open
author_facet Jeanna Parsons Leigh
Marat Slessarev
Frédérick D'Aragon
Matthew Weiss
Kimia Honarmand
Robert Sibbald
author_sort Jeanna Parsons Leigh
title Cardiac donation after circulatory determination of death: protocol for a mixed-methods study of healthcare provider and public perceptions in Canada
title_short Cardiac donation after circulatory determination of death: protocol for a mixed-methods study of healthcare provider and public perceptions in Canada
title_full Cardiac donation after circulatory determination of death: protocol for a mixed-methods study of healthcare provider and public perceptions in Canada
title_fullStr Cardiac donation after circulatory determination of death: protocol for a mixed-methods study of healthcare provider and public perceptions in Canada
title_full_unstemmed Cardiac donation after circulatory determination of death: protocol for a mixed-methods study of healthcare provider and public perceptions in Canada
title_sort cardiac donation after circulatory determination of death: protocol for a mixed-methods study of healthcare provider and public perceptions in canada
publisher BMJ Publishing Group
series BMJ Open
issn 2044-6055
publishDate 2020-07-01
description Introduction Cardiac transplantation remains the best treatment for patients with end-stage heart disease that is refractory to medical or device therapies, however, a major challenge for heart transplantation is the persistent discrepancy between the number of patients on waiting lists and the number of available hearts. While other countries (eg, UK, Australia and Belgium) have explored and implemented alternative models of transplantation, such as cardiac donation after circulatory determination of death (DCDD) to alleviate transplantation wait times, ethical concerns have hindered implementation in some countries. This study aims to explore the attitudes and opinions of healthcare providers and the public about cardiac DCDD in order to identify and describe opportunities and challenges in ensuring that proposed cardiac DCDD procedures in Canada are consistent with Canadian values and ethical norms.Methods and analysis This study will include two parts that will be conducted concurrently. Part 1 is a qualitative study consisting of semi-structured interviews with Canadian healthcare providers who routinely care for organ donors and/or transplant recipients to describe their perceptions about cardiac DCDD. Part 2 is a convergent parallel mixed-methods design consisting of a series of focus groups and follow-up surveys with members of the Canadian general public to describe their perceptions about cardiac DCDD.Ethics and dissemination This study has been approved by the Research Ethics Board at Western University. The findings will be presented at regional and national conferences and reported in peer-reviewed publications.
url https://bmjopen.bmj.com/content/10/7/e033932.full
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