Results from an online survey of adults with cystic fibrosis: Accessing and using life expectancy information.
Cystic fibrosis (CF) is the one of the most common inherited diseases. It affects around 10,000 people in the UK, and the median survival age is 47. Recent developments making use of longitudinal patient registry data are producing more detailed and relevant information about predicted life expectan...
Main Authors: | Ruth H Keogh, Diana Bilton, Rebecca Cosgriff, Dominic Kavanagh, Oliver Rayner, Philip M Sedgwick |
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Format: | Article |
Language: | English |
Published: |
Public Library of Science (PLoS)
2019-01-01
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Series: | PLoS ONE |
Online Access: | https://doi.org/10.1371/journal.pone.0213639 |
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