Engaging patients in primary care design: An evaluation of a novel approach to codesigning care

• Main Authors: Erin Hertel, Allen Cheadle, Juno Matthys, Katie Coleman, Marlaine Gray, Michele Robbins, Janice Tufte, Clarissa Hsu
• Format: Article
• Language: English
• Published: Wiley 2019-08-01
• Series: Health Expectations
• Subjects: organizational design; patient‐focused care; primary care; qualitative research; quality improvement
• Online Access: https://doi.org/10.1111/hex.12909

Abstract Objective Recognition is growing that to create truly patient‐centred care, health‐care organizations need to partner with patients around care design. More research into the benefits of engaging patients and the most effective ways of partnering with them is needed. Methods This study assessed the process and impact of a collaborative effort to design a new clinic service that balanced the number of patient and clinical provider/staff codesigners involved and recruited patients to represent diverse perspectives. Data sources included interviews with participants, event observation and participant surveys. Results Our evaluation found that including patients as equal partners improved the design process by infusing a real‐world, patient perspective. The pre‐event orientation and interactive methods used in the event fostered positive collaboration, as well as personal growth for the patient codesigners. Conclusion This study demonstrated the feasibility and benefits of including a roughly equal number of patients and clinical providers/staff in design events and ensuring that the patients represent diverse perspectives.