"It's my secret": fear of disclosure among sub-Saharan African migrant women living with HIV/AIDS in Belgium.

Patients with HIV not only have to deal with the challenges of living with an incurable disease but also with the dilemma of whether or not to disclose their status to their partners, families and friends. This study explores the extent to which sub-Saharan African (SSA) migrant women in Belgium dis...

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Main Authors: Agnes Ebotabe Arrey, Johan Bilsen, Patrick Lacor, Reginald Deschepper
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2015-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0119653
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spelling doaj-43829140111243b3929790ab0b4fbbe92021-03-03T20:08:38ZengPublic Library of Science (PLoS)PLoS ONE1932-62032015-01-01103e011965310.1371/journal.pone.0119653"It's my secret": fear of disclosure among sub-Saharan African migrant women living with HIV/AIDS in Belgium.Agnes Ebotabe ArreyJohan BilsenPatrick LacorReginald DeschepperPatients with HIV not only have to deal with the challenges of living with an incurable disease but also with the dilemma of whether or not to disclose their status to their partners, families and friends. This study explores the extent to which sub-Saharan African (SSA) migrant women in Belgium disclose their HIV positive status, reasons for disclosure/non-disclosure and how they deal with HIV disclosure. A qualitative study consisting of interviews with twenty-eight SSA women with HIV/AIDS was conducted. Thematic content analysis was employed to identify themes as they emerged. Our study reveals that these women usually only disclose their status to healthcare professionals because of the treatment and care they need. This selective disclosure is mainly due to the taboo of HIV disease in SSA culture. Stigma, notably self-stigma, greatly impedes HIV disclosure. Techniques to systematically incorporate HIV disclosure into post-test counseling and primary care services are highly recommended.https://doi.org/10.1371/journal.pone.0119653
collection DOAJ
language English
format Article
sources DOAJ
author Agnes Ebotabe Arrey
Johan Bilsen
Patrick Lacor
Reginald Deschepper
spellingShingle Agnes Ebotabe Arrey
Johan Bilsen
Patrick Lacor
Reginald Deschepper
"It's my secret": fear of disclosure among sub-Saharan African migrant women living with HIV/AIDS in Belgium.
PLoS ONE
author_facet Agnes Ebotabe Arrey
Johan Bilsen
Patrick Lacor
Reginald Deschepper
author_sort Agnes Ebotabe Arrey
title "It's my secret": fear of disclosure among sub-Saharan African migrant women living with HIV/AIDS in Belgium.
title_short "It's my secret": fear of disclosure among sub-Saharan African migrant women living with HIV/AIDS in Belgium.
title_full "It's my secret": fear of disclosure among sub-Saharan African migrant women living with HIV/AIDS in Belgium.
title_fullStr "It's my secret": fear of disclosure among sub-Saharan African migrant women living with HIV/AIDS in Belgium.
title_full_unstemmed "It's my secret": fear of disclosure among sub-Saharan African migrant women living with HIV/AIDS in Belgium.
title_sort "it's my secret": fear of disclosure among sub-saharan african migrant women living with hiv/aids in belgium.
publisher Public Library of Science (PLoS)
series PLoS ONE
issn 1932-6203
publishDate 2015-01-01
description Patients with HIV not only have to deal with the challenges of living with an incurable disease but also with the dilemma of whether or not to disclose their status to their partners, families and friends. This study explores the extent to which sub-Saharan African (SSA) migrant women in Belgium disclose their HIV positive status, reasons for disclosure/non-disclosure and how they deal with HIV disclosure. A qualitative study consisting of interviews with twenty-eight SSA women with HIV/AIDS was conducted. Thematic content analysis was employed to identify themes as they emerged. Our study reveals that these women usually only disclose their status to healthcare professionals because of the treatment and care they need. This selective disclosure is mainly due to the taboo of HIV disease in SSA culture. Stigma, notably self-stigma, greatly impedes HIV disclosure. Techniques to systematically incorporate HIV disclosure into post-test counseling and primary care services are highly recommended.
url https://doi.org/10.1371/journal.pone.0119653
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