Defining clinically relevant quality indicators that matter to people with Down syndrome

Defining clinically relevant quality indicators that matter to people with Down syndrome

Introduction: Down syndrome (DS) is related to many comorbidities. People with DS need lifelong (DS-specialised) healthcare provided by many different professionals. Little is known about the quality of available healthcare. This impedes monitoring, improvement and transparency. We aim to develop qu...

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Bibliographic Details
Main Authors: Francine van den Driessen Mareeuw, Antonia Coppus, Diana Delnoij, Esther de Vries
Format: Article
Language:English
Published: Ubiquity Press 2019-08-01
Series:International Journal of Integrated Care
Subjects:
quality indicators
measures
patient participation
down syndrome
qualitative research
delphi study
Online Access:https://www.ijic.org/articles/4958

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