Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care

Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care

Bibliographic Details
Main Authors:	Nicholas M. P. Annear, Richard E. Appleton, Zahabiyah Bassi, Rupesh Bhatt, Patrick F. Bolton, Pamela Crawford, Alex Crowe, Maureen Tossi, Frances Elmslie, Eric Finlay, Daniel P. Gale, Alex Henderson, Elizabeth A. Jones, Simon R. Johnson, Shelagh Joss, Larissa Kerecuk, Graham Lipkin, Patrick J. Morrison, Finbar J. O'Callaghan, Jill Cadwgan, Albert C. M. Ong, Julian R. Sampson, Charles Shepherd, J. Chris Kingswood
Format:	Article
Language:	English
Published:	Frontiers Media S.A. 2019-11-01
Series:	Frontiers in Neurology
Subjects:	tuberous sclerosis complex service specification commissioning surveillance guidelines clinics
Online Access:	https://www.frontiersin.org/article/10.3389/fneur.2019.01116/full

Similar Items

The person of the therapist in the practice of therapy
by: Cadwgan-Evans, Naomi
Published: (2014)

Parallel architectures for an industrial computer tomography system
by: Kingswood, N.
Published: (1989)

Being organisationally changed : exploring with NHS professional staff the impact of organisational change
by: Kingswood, Martha
Published: (2014)

Estudio exploratorio de la producción de biodiesel a partir de aceite de jatropha curcas en Chile
by: Kingswood Sideman, Alexander
Published: (2012)

Optimal treatment of tuberous sclerosis complex associated renal angiomyolipomata: a systematic review
by: John J. Bissler, et al.
Published: (2016-08-01)

Molecular genetic analysis of juvenile myoclonic epilepsy
by: Elmslie, Frances Veryan
Published: (1999)

Lemierre’s Syndrome: Recognising a Typical Presentation of a Rare Condition
by: James A. Coultas, et al.
Published: (2015-01-01)

Does glycosylation play a role in adaptation to altered oxygenation?
by: Annear, N. M. P.
Published: (2013)

Gastric Antral Vascular Ectasia in Systemic Sclerosis
by: Jill Johnson, et al.
Published: (2011-01-01)

Navigating constricted channels: local cooption, coercion, and concentration under co-management, Mweru-Luapula fishery, Zambia
by: Christopher M. Annear
Published: (2009-12-01)

Dementia knowledge assessment scale (DKAS): confirmatory factor analysis and comparative subscale scores among an international cohort
by: Michael J. Annear, et al.
Published: (2017-07-01)

Dementia in a regional hospital setting: contextual challenges and barriers to effective care
by: Michael J. Annear, et al.
Published: (2018-08-01)

Socializing the rain: human adaptation to ecological variability in a fishery, Mweru-Luapula, Zambia
by: Christopher M. Annear, et al.
Published: (2019-01-01)

An Exploration of the Impact on Individuals Who Have Experienced Multiple Losses From Death Over Time
by: Elmslie, Pamela Anne
Published: (2010)

An Exploration of the Impact on Individuals Who Have Experienced Multiple Losses From Death Over Time
by: Elmslie, Pamela Anne
Published: (2010)

Studies on the Effects of Paraben Mixtures on MCF-7 Breast Cancer Cells in Culture
by: Webber, Kristie Elmslie
Published: (2013)

Women’s experiences of personalised support for asthma care during pregnancy: A systematic review of the literature
by: Graham R. Williamson, et al.
Published: (2017-02-01)

Els estudis del teatre regional a la postdictadura argentina: desafiaments teòrics i impliacions polítiques
by: Mauricio Tossi
Published: (2015-07-01)

Las condiciones de posibilidad del teatro argentino interregional como objeto de estudio
by: Mauricio Tossi
Published: (2019-01-01)

Las lecturas del tiempo en la dramaturgia patagónica de la posdictadura
by: Mauricio Tossi
Published: (2014-12-01)

Los “contraespacios” en la dramaturgia posdictatorial de la Patagonia y el Noroeste Argentinos: estudios de casos comparados
by: Mauricio Tossi
Published: (2016-07-01)

Discursos de alteridad en la dramaturgia regional de la posdictadura argentina
by: Mauricio Tossi
Published: (2016-01-01)

Representaciones imaginarias en la dramaturgia argentina de la postdictadura: Camino de cornisa de Alejandro Finzi
by: Mauricio Tossi
Published: (2013-07-01)

ESTRATEGIAS DE REGIONALIZACIÓN EN LA HISTORIOGRAFÍA DEL TEATRO ARGENTINO
by: Mauricio Tossi
Published: (2019-07-01)

Relocalizaciones poéticas en el teatro patagónico contemporáneo
by: Mauricio Tossi
Published: (2018-12-01)

Enhancement of cranberry management by quantitative remote sensing techniques
by: Christofferson , Jill Maureen
Published: (2008)

Effects of component placement on patellar kinematics and loading in intraoperative and postoperative loading configurations
by: Brimacombe, Jill Maureen
Published: (2010)

Enhancement of cranberry management by quantitative remote sensing techniques
by: Christofferson , Jill Maureen
Published: (2008)

Taxation and Fiscal Expenditure in a Growth Model with Endogenous Fertility
by: Norman Sedgley, et al.
Published: (2015-05-01)

Cooking up the Culinary Nation or Savoring its Regions? Teaching Food Studies in Vietnam
by: Christopher Annear, et al.
Published: (2018-05-01)

Novel standing desk intervention in Japanese elementary education: mixed-methods evidence for health and pedagogical impacts
by: Michael Annear, et al.
Published: (2021-09-01)

Involvement of mental health professionals in the treatment of tuberous sclerosis complex–associated neuropsychiatric disorders (TAND): results of a multinational European electronic survey
by: Robert Waltereit, et al.
Published: (2021-05-01)

Standing frames for children with cerebral palsy: a mixed-methods feasibility study
by: Jane Goodwin, et al.
Published: (2018-09-01)

Reading at their peril : dangerous entertainment from Wilkie Collins to Mae West /
by: Jones-Renger, Jill J.
Published: (2000)

NATIONAL SECURITY IMPLICATIONS OF CYBER THREATS
by: ALEJANDRO AMIGO TOSSI
Published: (2017-09-01)

THE INTRASTATE CONFLICT AND ITS EFFECTS TO THE INTERNATIONAL SECURITY: SOMALIA BETWEEN 2007 AND 2010
by: ALEJANDRO AMIGO TOSSI
Published: (2017-12-01)

PEACE OPERATIONS AND THE “RESPONSIBILITY TO PROTECT” CONCEPT
by: ALEJANDRO AMIGO TOSSI
Published: (2018-02-01)

THE ROLE OF UNASUR IN INTRA-STATE CONFLICTS IN THE REGION
by: ALEJANDRO AMIGO TOSSI
Published: (2017-12-01)

Project-based learning in initial teacher training curricula: Incorporating a visual method to enhance student agency and reflexive engagement in the learning process
by: Chris Warnock, et al.
Published: (2019-09-01)

From adaptation to nativization : a synchronic analysis of the category of aspect in borrowed verbs in Russian, Bulgarian and Macedonian /
by: Neikirk Schuler, Jill Maureen
Published: (1996)