Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care
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Online Access: | https://www.frontiersin.org/article/10.3389/fneur.2019.01116/full |
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doaj-416cfa5982e74156bdce76fe0309cc6b2020-11-25T01:54:27ZengFrontiers Media S.A.Frontiers in Neurology1664-22952019-11-011010.3389/fneur.2019.01116478844Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated CareNicholas M. P. Annear0Nicholas M. P. Annear1Richard E. Appleton2Zahabiyah Bassi3Rupesh Bhatt4Patrick F. Bolton5Pamela Crawford6Alex Crowe7Maureen Tossi8Maureen Tossi9Frances Elmslie10Frances Elmslie11Eric Finlay12Daniel P. Gale13Alex Henderson14Elizabeth A. Jones15Elizabeth A. Jones16Simon R. Johnson17Simon R. Johnson18Shelagh Joss19Larissa Kerecuk20Graham Lipkin21Patrick J. Morrison22Finbar J. O'Callaghan23Jill Cadwgan24Jill Cadwgan25Jill Cadwgan26Albert C. M. Ong27Albert C. M. Ong28Julian R. Sampson29Charles Shepherd30J. Chris Kingswood31J. Chris Kingswood32J. Chris Kingswood33St George's University Hospitals NHS Foundation Trust, London, United KingdomGenetics and Genomics Clinical Academic Group, Molecular and Clinical Sciences Research Institute, St George's, University of London, London, United KingdomAlder Hey Children's NHS Foundation Trust, Liverpool, United KingdomAlder Hey Children's NHS Foundation Trust, Liverpool, United KingdomUniversity Hospitals Birmingham NHS Foundation Trust, Birmingham, United KingdomKing's College Hospital NHS Foundation Trust, London, United KingdomYork Teaching Hospitals NHS Foundation Trust, York, United KingdomWirral University Teaching Hospitals NHS Foundation Trust, Merseyside, United KingdomGenetics and Genomics Clinical Academic Group, Molecular and Clinical Sciences Research Institute, St George's, University of London, London, United KingdomTuberous Sclerosis Association, London, United KingdomSt George's University Hospitals NHS Foundation Trust, London, United KingdomGenetics and Genomics Clinical Academic Group, Molecular and Clinical Sciences Research Institute, St George's, University of London, London, United KingdomLeeds Teaching Hospitals NHS Trust, Leeds, United Kingdom0Department of Renal Medicine, University College London, London, United Kingdom1Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom2Centre for Genomic Medicine, St. Mary's Hospital, Central Manchester University Hospitals NHS Foundation Trust, Manchester, United Kingdom3Centre for Genomic Medicine, Manchester Academic Health Science Centre, University of Manchester, Manchester, United Kingdom4Division of Respiratory Medicine, Faculty of Medicine & Health Sciences, University of Nottingham, Nottingham, United Kingdom5National Centre for Lymphangioleiomyomatosis, Nottingham, United Kingdom6NHS Greater Glasgow and Clyde, Glasgow, United Kingdom7Birmingham Children's Hospital NHS Foundation Trust, Birmingham, United KingdomUniversity Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom8Tuberous Sclerosis Clinic, Belfast Health and Social Care Trust, Belfast, United Kingdom9Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom0Evelina London Children's Hospital, St. Thomas' Hospital, London, United Kingdom1School of Life Course Sciences, King's College London, London, United Kingdom2Institute of Neuroscience, Newcastle University, Newcastle upon Tyne, United Kingdom3Kidney Genetics Group, Academic Nephrology Unit, University of Sheffield Medical School, Sheffield, United Kingdom4Sheffield Kidney Institute, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, United Kingdom5Institute of Medical Genetics, Cardiff University School of Medicine, Cardiff, United Kingdom6Nobles Hospital, Douglas, United KingdomSt George's University Hospitals NHS Foundation Trust, London, United KingdomGenetics and Genomics Clinical Academic Group, Molecular and Clinical Sciences Research Institute, St George's, University of London, London, United Kingdom7Brighton and Sussex University Hospitals NHS Trust, Brighton, United Kingdomhttps://www.frontiersin.org/article/10.3389/fneur.2019.01116/fulltuberous sclerosis complexservice specificationcommissioningsurveillanceguidelinesclinics |
collection |
DOAJ |
language |
English |
format |
Article |
sources |
DOAJ |
author |
Nicholas M. P. Annear Nicholas M. P. Annear Richard E. Appleton Zahabiyah Bassi Rupesh Bhatt Patrick F. Bolton Pamela Crawford Alex Crowe Maureen Tossi Maureen Tossi Frances Elmslie Frances Elmslie Eric Finlay Daniel P. Gale Alex Henderson Elizabeth A. Jones Elizabeth A. Jones Simon R. Johnson Simon R. Johnson Shelagh Joss Larissa Kerecuk Graham Lipkin Patrick J. Morrison Finbar J. O'Callaghan Jill Cadwgan Jill Cadwgan Jill Cadwgan Albert C. M. Ong Albert C. M. Ong Julian R. Sampson Charles Shepherd J. Chris Kingswood J. Chris Kingswood J. Chris Kingswood |
spellingShingle |
Nicholas M. P. Annear Nicholas M. P. Annear Richard E. Appleton Zahabiyah Bassi Rupesh Bhatt Patrick F. Bolton Pamela Crawford Alex Crowe Maureen Tossi Maureen Tossi Frances Elmslie Frances Elmslie Eric Finlay Daniel P. Gale Alex Henderson Elizabeth A. Jones Elizabeth A. Jones Simon R. Johnson Simon R. Johnson Shelagh Joss Larissa Kerecuk Graham Lipkin Patrick J. Morrison Finbar J. O'Callaghan Jill Cadwgan Jill Cadwgan Jill Cadwgan Albert C. M. Ong Albert C. M. Ong Julian R. Sampson Charles Shepherd J. Chris Kingswood J. Chris Kingswood J. Chris Kingswood Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care Frontiers in Neurology tuberous sclerosis complex service specification commissioning surveillance guidelines clinics |
author_facet |
Nicholas M. P. Annear Nicholas M. P. Annear Richard E. Appleton Zahabiyah Bassi Rupesh Bhatt Patrick F. Bolton Pamela Crawford Alex Crowe Maureen Tossi Maureen Tossi Frances Elmslie Frances Elmslie Eric Finlay Daniel P. Gale Alex Henderson Elizabeth A. Jones Elizabeth A. Jones Simon R. Johnson Simon R. Johnson Shelagh Joss Larissa Kerecuk Graham Lipkin Patrick J. Morrison Finbar J. O'Callaghan Jill Cadwgan Jill Cadwgan Jill Cadwgan Albert C. M. Ong Albert C. M. Ong Julian R. Sampson Charles Shepherd J. Chris Kingswood J. Chris Kingswood J. Chris Kingswood |
author_sort |
Nicholas M. P. Annear |
title |
Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care |
title_short |
Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care |
title_full |
Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care |
title_fullStr |
Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care |
title_full_unstemmed |
Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care |
title_sort |
tuberous sclerosis complex (tsc): expert recommendations for provision of coordinated care |
publisher |
Frontiers Media S.A. |
series |
Frontiers in Neurology |
issn |
1664-2295 |
publishDate |
2019-11-01 |
topic |
tuberous sclerosis complex service specification commissioning surveillance guidelines clinics |
url |
https://www.frontiersin.org/article/10.3389/fneur.2019.01116/full |
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