id doaj-416cfa5982e74156bdce76fe0309cc6b
record_format Article
spelling doaj-416cfa5982e74156bdce76fe0309cc6b2020-11-25T01:54:27ZengFrontiers Media S.A.Frontiers in Neurology1664-22952019-11-011010.3389/fneur.2019.01116478844Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated CareNicholas M. P. Annear0Nicholas M. P. Annear1Richard E. Appleton2Zahabiyah Bassi3Rupesh Bhatt4Patrick F. Bolton5Pamela Crawford6Alex Crowe7Maureen Tossi8Maureen Tossi9Frances Elmslie10Frances Elmslie11Eric Finlay12Daniel P. Gale13Alex Henderson14Elizabeth A. Jones15Elizabeth A. Jones16Simon R. Johnson17Simon R. Johnson18Shelagh Joss19Larissa Kerecuk20Graham Lipkin21Patrick J. Morrison22Finbar J. O'Callaghan23Jill Cadwgan24Jill Cadwgan25Jill Cadwgan26Albert C. M. Ong27Albert C. M. Ong28Julian R. Sampson29Charles Shepherd30J. Chris Kingswood31J. Chris Kingswood32J. Chris Kingswood33St George's University Hospitals NHS Foundation Trust, London, United KingdomGenetics and Genomics Clinical Academic Group, Molecular and Clinical Sciences Research Institute, St George's, University of London, London, United KingdomAlder Hey Children's NHS Foundation Trust, Liverpool, United KingdomAlder Hey Children's NHS Foundation Trust, Liverpool, United KingdomUniversity Hospitals Birmingham NHS Foundation Trust, Birmingham, United KingdomKing's College Hospital NHS Foundation Trust, London, United KingdomYork Teaching Hospitals NHS Foundation Trust, York, United KingdomWirral University Teaching Hospitals NHS Foundation Trust, Merseyside, United KingdomGenetics and Genomics Clinical Academic Group, Molecular and Clinical Sciences Research Institute, St George's, University of London, London, United KingdomTuberous Sclerosis Association, London, United KingdomSt George's University Hospitals NHS Foundation Trust, London, United KingdomGenetics and Genomics Clinical Academic Group, Molecular and Clinical Sciences Research Institute, St George's, University of London, London, United KingdomLeeds Teaching Hospitals NHS Trust, Leeds, United Kingdom0Department of Renal Medicine, University College London, London, United Kingdom1Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom2Centre for Genomic Medicine, St. Mary's Hospital, Central Manchester University Hospitals NHS Foundation Trust, Manchester, United Kingdom3Centre for Genomic Medicine, Manchester Academic Health Science Centre, University of Manchester, Manchester, United Kingdom4Division of Respiratory Medicine, Faculty of Medicine & Health Sciences, University of Nottingham, Nottingham, United Kingdom5National Centre for Lymphangioleiomyomatosis, Nottingham, United Kingdom6NHS Greater Glasgow and Clyde, Glasgow, United Kingdom7Birmingham Children's Hospital NHS Foundation Trust, Birmingham, United KingdomUniversity Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom8Tuberous Sclerosis Clinic, Belfast Health and Social Care Trust, Belfast, United Kingdom9Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom0Evelina London Children's Hospital, St. Thomas' Hospital, London, United Kingdom1School of Life Course Sciences, King's College London, London, United Kingdom2Institute of Neuroscience, Newcastle University, Newcastle upon Tyne, United Kingdom3Kidney Genetics Group, Academic Nephrology Unit, University of Sheffield Medical School, Sheffield, United Kingdom4Sheffield Kidney Institute, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, United Kingdom5Institute of Medical Genetics, Cardiff University School of Medicine, Cardiff, United Kingdom6Nobles Hospital, Douglas, United KingdomSt George's University Hospitals NHS Foundation Trust, London, United KingdomGenetics and Genomics Clinical Academic Group, Molecular and Clinical Sciences Research Institute, St George's, University of London, London, United Kingdom7Brighton and Sussex University Hospitals NHS Trust, Brighton, United Kingdomhttps://www.frontiersin.org/article/10.3389/fneur.2019.01116/fulltuberous sclerosis complexservice specificationcommissioningsurveillanceguidelinesclinics
collection DOAJ
language English
format Article
sources DOAJ
author Nicholas M. P. Annear
Nicholas M. P. Annear
Richard E. Appleton
Zahabiyah Bassi
Rupesh Bhatt
Patrick F. Bolton
Pamela Crawford
Alex Crowe
Maureen Tossi
Maureen Tossi
Frances Elmslie
Frances Elmslie
Eric Finlay
Daniel P. Gale
Alex Henderson
Elizabeth A. Jones
Elizabeth A. Jones
Simon R. Johnson
Simon R. Johnson
Shelagh Joss
Larissa Kerecuk
Graham Lipkin
Patrick J. Morrison
Finbar J. O'Callaghan
Jill Cadwgan
Jill Cadwgan
Jill Cadwgan
Albert C. M. Ong
Albert C. M. Ong
Julian R. Sampson
Charles Shepherd
J. Chris Kingswood
J. Chris Kingswood
J. Chris Kingswood
spellingShingle Nicholas M. P. Annear
Nicholas M. P. Annear
Richard E. Appleton
Zahabiyah Bassi
Rupesh Bhatt
Patrick F. Bolton
Pamela Crawford
Alex Crowe
Maureen Tossi
Maureen Tossi
Frances Elmslie
Frances Elmslie
Eric Finlay
Daniel P. Gale
Alex Henderson
Elizabeth A. Jones
Elizabeth A. Jones
Simon R. Johnson
Simon R. Johnson
Shelagh Joss
Larissa Kerecuk
Graham Lipkin
Patrick J. Morrison
Finbar J. O'Callaghan
Jill Cadwgan
Jill Cadwgan
Jill Cadwgan
Albert C. M. Ong
Albert C. M. Ong
Julian R. Sampson
Charles Shepherd
J. Chris Kingswood
J. Chris Kingswood
J. Chris Kingswood
Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care
Frontiers in Neurology
tuberous sclerosis complex
service specification
commissioning
surveillance
guidelines
clinics
author_facet Nicholas M. P. Annear
Nicholas M. P. Annear
Richard E. Appleton
Zahabiyah Bassi
Rupesh Bhatt
Patrick F. Bolton
Pamela Crawford
Alex Crowe
Maureen Tossi
Maureen Tossi
Frances Elmslie
Frances Elmslie
Eric Finlay
Daniel P. Gale
Alex Henderson
Elizabeth A. Jones
Elizabeth A. Jones
Simon R. Johnson
Simon R. Johnson
Shelagh Joss
Larissa Kerecuk
Graham Lipkin
Patrick J. Morrison
Finbar J. O'Callaghan
Jill Cadwgan
Jill Cadwgan
Jill Cadwgan
Albert C. M. Ong
Albert C. M. Ong
Julian R. Sampson
Charles Shepherd
J. Chris Kingswood
J. Chris Kingswood
J. Chris Kingswood
author_sort Nicholas M. P. Annear
title Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care
title_short Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care
title_full Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care
title_fullStr Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care
title_full_unstemmed Tuberous Sclerosis Complex (TSC): Expert Recommendations for Provision of Coordinated Care
title_sort tuberous sclerosis complex (tsc): expert recommendations for provision of coordinated care
publisher Frontiers Media S.A.
series Frontiers in Neurology
issn 1664-2295
publishDate 2019-11-01
topic tuberous sclerosis complex
service specification
commissioning
surveillance
guidelines
clinics
url https://www.frontiersin.org/article/10.3389/fneur.2019.01116/full
work_keys_str_mv AT nicholasmpannear tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT nicholasmpannear tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT richardeappleton tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT zahabiyahbassi tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT rupeshbhatt tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT patrickfbolton tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT pamelacrawford tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT alexcrowe tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT maureentossi tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT maureentossi tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT franceselmslie tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT franceselmslie tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT ericfinlay tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT danielpgale tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT alexhenderson tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT elizabethajones tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT elizabethajones tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT simonrjohnson tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT simonrjohnson tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT shelaghjoss tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT larissakerecuk tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT grahamlipkin tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT patrickjmorrison tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT finbarjocallaghan tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT jillcadwgan tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT jillcadwgan tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT jillcadwgan tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT albertcmong tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT albertcmong tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT julianrsampson tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT charlesshepherd tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT jchriskingswood tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT jchriskingswood tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
AT jchriskingswood tuberoussclerosiscomplextscexpertrecommendationsforprovisionofcoordinatedcare
_version_ 1724987363929620480