Introducing Safe Access to Sensitive Data at the University of Bristol

• Main Authors: Debra Hiom, Stephen Gray, Damian Steer, Kirsty Merrett, Kellie Snow, Zosia Beckles
• Format: Article
• Language: English
• Published: University of Edinburgh 2017-12-01
• Series: International Journal of Digital Curation
• Online Access: http://www.ijdc.net/article/view/506

The economic and societal benefits of making research data available for reuse and verification are now widely understood and accepted. However, there are some research studies, particularly those involving human participants, which face particular challenges in making their data openly available due to the sensitivities of the data. Despite its potential value to society this material is invariably kept locked away due to concerns over its inappropriate disclosure. The University of Bristol’s Research Data Service has developed the institutional infrastructure, including policies and procedures, required to safely grant access to sensitive research data in a way that is transparent, secure, sustainable and crucially, replicable by other institutions. This paper looks at the background and challenges faced by the institution in dealing with sensitive data, outlines the approach taken and some of the outstanding issues to be tackled. This paper looks at the background and challenges faced by the institution in dealing with sensitive data, outlines the approach taken and some of the outstanding issues to be tackled.