Pelvic organ prolapse and treatment decisions– developing an online preference-sensitive tool to support shared decisions

• Main Authors: Mette Hulbaek, Eva Knutz, Niels Teglhus Ebbesen, Jette Primdahl, Jesper Bo Nielsen, Regner Birkelund
• Format: Article
• Language: English
• Published: BMC 2020-10-01
• Series: BMC Medical Informatics and Decision Making
• Subjects: Shared decision making; Preference-sensitive decisions; Pelvic organ prolapse; User involvement
• Online Access: http://link.springer.com/article/10.1186/s12911-020-01264-1

Abstract Background Female patients with pelvic organ prolapse and clinicians need to take decisions regarding treatment that are often unpredictable in relation to how they impact the future everyday lives of the patients. This study formed the developmental phase of a larger study to develop and test an online tool to support shared decision-making. Methods Patients, health care professionals and other stakeholders participated in the development and evaluation process of this tool. The collected data was generated from observational studies, exploratory interviews with prompt cards and workshops with end users from four Danish gynecology outpatient clinics. Results Content analysis led to important themes. For the patients three themes emerged: 1) how the impact of symptoms on everyday life affected the need for relief, 2) their bodily perception and sex life and 3) their worries about the future. For clinicians the different symptoms and their severity was a main theme. Conclusions This article provides an overall description and discussion of the development methodology. It demonstrates how user involvement informed the prototyping process and how patients’ preferences were included in the final prototype. Whether the tool actually increases SDM, remains to be tested in a pilot feasibility study.