Is there a duty to participate in digital epidemiology?
Abstract This paper poses the question of whether people have a duty to participate in digital epidemiology. While an implied duty to participate has been argued for in relation to biomedical research in general, digital epidemiology involves processing of non-medical, granular and proprietary data...
Main Authors: | Brent Mittelstadt, Justus Benzler, Lukas Engelmann, Barbara Prainsack, Effy Vayena |
---|---|
Format: | Article |
Language: | English |
Published: |
BMC
2018-05-01
|
Series: | Life Sciences, Society and Policy |
Online Access: | http://link.springer.com/article/10.1186/s40504-018-0074-1 |
Similar Items
-
Adapting standards: ethical oversight of participant-led health research.
by: Effy Vayena, et al.
Published: (2013-01-01) -
Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network
by: Alessandro Blasimme, et al.
Published: (2020-12-01) -
Digital Contact Tracing Against COVID-19 in Europe: Current Features and Ongoing Developments
by: Alessandro Blasimme, et al.
Published: (2021-06-01) -
Digital contact-tracing during the Covid-19 pandemic: An analysis of newspaper coverage in Germany, Austria, and Switzerland.
by: Julia Amann, et al.
Published: (2021-01-01) -
Between Openness and Privacy in Genomics.
by: Effy Vayena, et al.
Published: (2016-01-01)