Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
Abstract Aims Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic stat...
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| Format: | Article |
| Language: | English |
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Wiley
2019-03-01
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| Series: | Clinical and Translational Allergy |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s13601-019-0252-0 |
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DOAJ |
| language |
English |
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Article |
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DOAJ |
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J. Bousquet A. Bedbrook W. Czarlewski G. L. Onorato S. Arnavielhe D. Laune E. Mathieu-Dupas J. Fonseca E. Costa O. Lourenço M. Morais-Almeida A. Todo-Bom M. Illario E. Menditto G. W. Canonica L. Cecchi R. Monti L. Napoli M. T. Ventura G. De Feo W. J. Fokkens N. H. Chavannes S. Reitsma A. A. Cruz J. da Silva F. S. Serpa D. Larenas-Linnemann J. M. Fuentes Perez Y. R. Huerta-Villalobos D. Rivero-Yeverino E. Rodriguez-Zagal A. Valiulis R. Dubakiene R. Emuzyte V. Kvedariene I. Annesi-Maesano H. Blain P. Bonniaud I. Bosse Y. Dauvilliers P. Devillier J. F. Fontaine J. L. Pépin N. Pham-Thi F. Portejoie R. Picard N. Roche C. Rolland P. Schmidt-Grendelmeier P. Kuna B. Samolinski J. M. Anto V. Cardona J. Mullol H. Pinnock D. Ryan A. Sheikh S. Walker S. Williams S. Becker L. Klimek O. Pfaar K. C. Bergmann R. Mösges T. Zuberbier R. E. Roller-Wirnsberger P. V. Tomazic T. Haahtela J. Salimäki S. Toppila-Salmi E. Valovirta T. Vasankari B. Gemicioğlu A. Yorgancioglu N. G. Papadopoulos E. P. Prokopakis I. G. Tsiligianni S. Bosnic-Anticevich R. O’Hehir J. C. Ivancevich H. Neffen M. E. Zernotti I. Kull E. Melén M. Wickman C. Bachert P. W. Hellings G. Brusselle S. Palkonen C. Bindslev-Jensen E. Eller S. Waserman L. P. Boulet J. Bouchard D. K. Chu H. J. Schünemann M. Sova G. De Vries M. van Eerd I. Agache I. J. Ansotegui M. Bewick T. Casale M. Dykewick M. Ebisawa R. Murray R. Naclerio Y. Okamoto D. V. Wallace The MASK study group |
| spellingShingle |
J. Bousquet A. Bedbrook W. Czarlewski G. L. Onorato S. Arnavielhe D. Laune E. Mathieu-Dupas J. Fonseca E. Costa O. Lourenço M. Morais-Almeida A. Todo-Bom M. Illario E. Menditto G. W. Canonica L. Cecchi R. Monti L. Napoli M. T. Ventura G. De Feo W. J. Fokkens N. H. Chavannes S. Reitsma A. A. Cruz J. da Silva F. S. Serpa D. Larenas-Linnemann J. M. Fuentes Perez Y. R. Huerta-Villalobos D. Rivero-Yeverino E. Rodriguez-Zagal A. Valiulis R. Dubakiene R. Emuzyte V. Kvedariene I. Annesi-Maesano H. Blain P. Bonniaud I. Bosse Y. Dauvilliers P. Devillier J. F. Fontaine J. L. Pépin N. Pham-Thi F. Portejoie R. Picard N. Roche C. Rolland P. Schmidt-Grendelmeier P. Kuna B. Samolinski J. M. Anto V. Cardona J. Mullol H. Pinnock D. Ryan A. Sheikh S. Walker S. Williams S. Becker L. Klimek O. Pfaar K. C. Bergmann R. Mösges T. Zuberbier R. E. Roller-Wirnsberger P. V. Tomazic T. Haahtela J. Salimäki S. Toppila-Salmi E. Valovirta T. Vasankari B. Gemicioğlu A. Yorgancioglu N. G. Papadopoulos E. P. Prokopakis I. G. Tsiligianni S. Bosnic-Anticevich R. O’Hehir J. C. Ivancevich H. Neffen M. E. Zernotti I. Kull E. Melén M. Wickman C. Bachert P. W. Hellings G. Brusselle S. Palkonen C. Bindslev-Jensen E. Eller S. Waserman L. P. Boulet J. Bouchard D. K. Chu H. J. Schünemann M. Sova G. De Vries M. van Eerd I. Agache I. J. Ansotegui M. Bewick T. Casale M. Dykewick M. Ebisawa R. Murray R. Naclerio Y. Okamoto D. V. Wallace The MASK study group Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma Clinical and Translational Allergy App Asthma Care pathways MASK mHealth Rhinitis |
| author_facet |
J. Bousquet A. Bedbrook W. Czarlewski G. L. Onorato S. Arnavielhe D. Laune E. Mathieu-Dupas J. Fonseca E. Costa O. Lourenço M. Morais-Almeida A. Todo-Bom M. Illario E. Menditto G. W. Canonica L. Cecchi R. Monti L. Napoli M. T. Ventura G. De Feo W. J. Fokkens N. H. Chavannes S. Reitsma A. A. Cruz J. da Silva F. S. Serpa D. Larenas-Linnemann J. M. Fuentes Perez Y. R. Huerta-Villalobos D. Rivero-Yeverino E. Rodriguez-Zagal A. Valiulis R. Dubakiene R. Emuzyte V. Kvedariene I. Annesi-Maesano H. Blain P. Bonniaud I. Bosse Y. Dauvilliers P. Devillier J. F. Fontaine J. L. Pépin N. Pham-Thi F. Portejoie R. Picard N. Roche C. Rolland P. Schmidt-Grendelmeier P. Kuna B. Samolinski J. M. Anto V. Cardona J. Mullol H. Pinnock D. Ryan A. Sheikh S. Walker S. Williams S. Becker L. Klimek O. Pfaar K. C. Bergmann R. Mösges T. Zuberbier R. E. Roller-Wirnsberger P. V. Tomazic T. Haahtela J. Salimäki S. Toppila-Salmi E. Valovirta T. Vasankari B. Gemicioğlu A. Yorgancioglu N. G. Papadopoulos E. P. Prokopakis I. G. Tsiligianni S. Bosnic-Anticevich R. O’Hehir J. C. Ivancevich H. Neffen M. E. Zernotti I. Kull E. Melén M. Wickman C. Bachert P. W. Hellings G. Brusselle S. Palkonen C. Bindslev-Jensen E. Eller S. Waserman L. P. Boulet J. Bouchard D. K. Chu H. J. Schünemann M. Sova G. De Vries M. van Eerd I. Agache I. J. Ansotegui M. Bewick T. Casale M. Dykewick M. Ebisawa R. Murray R. Naclerio Y. Okamoto D. V. Wallace The MASK study group |
| author_sort |
J. Bousquet |
| title |
Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma |
| title_short |
Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma |
| title_full |
Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma |
| title_fullStr |
Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma |
| title_full_unstemmed |
Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma |
| title_sort |
guidance to 2018 good practice: aria digitally-enabled, integrated, person-centred care for rhinitis and asthma |
| publisher |
Wiley |
| series |
Clinical and Translational Allergy |
| issn |
2045-7022 |
| publishDate |
2019-03-01 |
| description |
Abstract Aims Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. Methods MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. Stakeholders Include patients, health care professionals (pharmacists and physicians), authorities, patient’s associations, private and public sectors. Results MASK is deployed in 23 countries and 17 languages. 26,000 users have registered. EU grants (2018) MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour). Lessons learnt (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases. |
| topic |
App Asthma Care pathways MASK mHealth Rhinitis |
| url |
http://link.springer.com/article/10.1186/s13601-019-0252-0 |
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doaj-387d2bfd7cb34c438e5aa80cf56def7a2021-09-02T08:29:12ZengWileyClinical and Translational Allergy2045-70222019-03-019111910.1186/s13601-019-0252-0Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthmaJ. Bousquet0A. Bedbrook1W. Czarlewski2G. L. Onorato3S. Arnavielhe4D. Laune5E. Mathieu-Dupas6J. Fonseca7E. Costa8O. Lourenço9M. Morais-Almeida10A. Todo-Bom11M. Illario12E. Menditto13G. W. Canonica14L. Cecchi15R. Monti16L. Napoli17M. T. Ventura18G. De Feo19W. J. Fokkens20N. H. Chavannes21S. Reitsma22A. A. Cruz23J. da Silva24F. S. Serpa25D. Larenas-Linnemann26J. M. Fuentes Perez27Y. R. Huerta-Villalobos28D. Rivero-Yeverino29E. Rodriguez-Zagal30A. Valiulis31R. Dubakiene32R. Emuzyte33V. Kvedariene34I. Annesi-Maesano35H. Blain36P. Bonniaud37I. Bosse38Y. Dauvilliers39P. Devillier40J. F. Fontaine41J. L. Pépin42N. Pham-Thi43F. Portejoie44R. Picard45N. Roche46C. Rolland47P. Schmidt-Grendelmeier48P. Kuna49B. Samolinski50J. M. Anto51V. Cardona52J. Mullol53H. Pinnock54D. Ryan55A. Sheikh56S. Walker57S. Williams58S. Becker59L. Klimek60O. Pfaar61K. C. Bergmann62R. Mösges63T. Zuberbier64R. E. Roller-Wirnsberger65P. V. Tomazic66T. Haahtela67J. Salimäki68S. Toppila-Salmi69E. Valovirta70T. Vasankari71B. Gemicioğlu72A. Yorgancioglu73N. G. Papadopoulos74E. P. Prokopakis75I. G. Tsiligianni76S. Bosnic-Anticevich77R. O’Hehir78J. C. Ivancevich79H. Neffen80M. E. Zernotti81I. Kull82E. Melén83M. Wickman84C. Bachert85P. W. Hellings86G. Brusselle87S. Palkonen88C. Bindslev-Jensen89E. Eller90S. Waserman91L. P. Boulet92J. Bouchard93D. K. Chu94H. J. Schünemann95M. Sova96G. De Vries97M. van Eerd98I. Agache99I. J. Ansotegui100M. Bewick101T. Casale102M. Dykewick103M. Ebisawa104R. Murray105R. Naclerio106Y. Okamoto107D. V. Wallace108The MASK study groupMACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de VilleneuveMACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de VilleneuveMedical Consulting CzarlewskiMACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de VilleneuveKYomed INNOVKYomed INNOVKYomed INNOVCenter for Research in Health Technology and Information Systems, Faculdade de Medicina da Universidade do Porto, MedidaUCIBIO, REQUINTE, Faculty of Pharmacy and Competence Center on Active and Healthy Ageing, University of Porto (Porto4Ageing)Faculty of Health Sciences and CICS – UBI, Health Sciences Research Centre, University of Beira InteriorAllergy Center, CUF Descobertas HospitalImunoalergologia, Centro Hospitalar Universitário de Coimbra and Faculty of Medicine, University of CoimbraDivision for Health Innovation, Campania Region and Federico II University Hospital Naples (R&D and DISMET)CIRFF, Federico II UniversityPersonalized Medicine Clinic Asthma and Allergy, Humanitas Research Hospital, Humanitas UniversitySOS Allergology and Clinical Immunology, USL Toscana CentroDepartment of Medical Sciences, Allergy and Clinical Immunology Unit, University of Torino & Mauriziano HospitalConsortium of Pharmacies and Services COSAFERUnit of Geriatric Immunoallergology, University of Bari Medical SchoolDepartment of Medicine, Surgery and Dentistry “Scuola Medica Salernitana”, University of SalernoDepartment of Otorhinolaryngology, Amsterdam University Medical Centre (AMC)Department of Public Health and Primary Care, Leiden University Medical CenterDepartment of Otorhinolaryngology, Amsterdam University Medical Centre (AMC)ProAR – Nucleo de Excelencia em Asma, Federal University of BahiaWHO GARD Planning GroupDepartment of Internal Medicine and Allergic Clinic of Professor Polydoro Ernani de Sao, Thiago University Hospital, Federal University of Santa Catarina (UFSC)Center of Excellence in Asthma and Allergy, Médica Sur Clinical Foundation and HospitalHospital General Regional 1 “Dr Carlos Mc Gregor Sanchez Navarro” IMSSHospital General Regional 1 “Dr Carlos Mc Gregor Sanchez Navarro” IMSSAllergistAllergistClinic of Children’s Diseases, and Institute of Health Sciences Department of Public Health, Vilnius University Institute of Clinical MedicineClinic of Infectious, Chest Diseases, Dermatology and Allergology, Vilnius UniversityClinic of Children’s Diseases, Faculty of Medicine, Vilnius UniversityFaculty of Medicine, Vilnius UniversityEpidemiology of Allergic and Respiratory Diseases, Department Institute Pierre Louis of Epidemiology and Public Health, INSERM, Sorbonne Université, Medical School Saint AntoineDepartment of Geriatrics, Montpellier University HospitalCHU DijonAllergistSleep Unit, Department of Neurology, Hôpital Gui-de-Chauliac MontpellierUPRES EA220, Pôle des Maladies des Voies Respiratoires, Hôpital Foch, Université Paris-SaclayAllergistLaboratoire HP2, Grenoble, INSERM, U1042, Université Grenoble AlpesAllergy Department, Pasteur InstituteMACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de VilleneuveConseil Général de l’Economie Ministère de l’Economie, de l’Industrie et du NumériquePneumologie et Soins Intensifs Respiratoires, Hôpitaux Universitaires Paris, Centre Hôpital CochinAssociation Asthme et AllergieAllergy Unit, Department of Dermatology, University Hospital of ZurichDivision of Internal Medicine, Asthma and Allergy, Barlicki University Hospital, Medical University of LodzDepartment of Prevention of Envinronmental Hazards and Allergology, Medical University of WarsawISGlobAL, Centre for Research in Environmental Epidemiology (CREAL)Allergy Section, Department of Internal Medicine, Hospital Vall ‘dHebron & ARADyAL Research NetworkRhinology Unit and Smell Clinic, ENT Department, Hospital Clínic, University of BarcelonaAsthma UK Centre for Applied Research, The Usher Institute of Population Health Sciences and Informatics, The University of EdinburghHonorary Clinical Research Fellow, Allergy and Respiratory Research Group, Usher Institute of Population Health Sciences and Informatics, Medical School, University of EdinburghThe Usher Institute of Population Health Sciences and Informatics, The University of EdinburghAsthma UKInternational Primary Care Respiratory Group IPCRGDepartment of Otolaryngology, Head and Neck Surgery, University of MainzCenter for Rhinology and AllergologyDepartment of Otorhinolaryngology, Head and Neck Surgery, Section of Rhinology and Allergy, University Hospital Marburg, Phillipps-Universität MarburgCorporate Member of Freie Universität Berlin, Humboldt-Uniersität zu Berlin, Charité - Universitätsmedizin BerlinInstitute of Medical Statistics, and Computational Biology, Medical Faculty, University of CologneCorporate Member of Freie Universität Berlin, Humboldt-Uniersität zu Berlin, Charité - Universitätsmedizin BerlinDepartment of Internal Medicine, Medical University of GrazDepartment of ENT, Medical University of GrazSkin and Allergy Hospital, Helsinki University Hospital, University of HelsinkiAssociation of Finnish PharmaciesSkin and Allergy Hospital, Helsinki University Hospital, University of HelsinkiDepartment of Lung Diseases and Clinical Immunology, Terveystalo Allergy Clinic, University of TurkuFILHA, Finnish Lung AssociationDepartment of Pulmonary Diseases, Cerrahpasa Faculty of Medicine, Istanbul University-CerrahpasaDepartment of Pulmonary Diseases, Faculty of Medicine, Celal Bayar UniversityDivision of Infection, Immunity and Respiratory Medicine, Royal Manchester Children’s Hospital, University of ManchesterDepartment of Otorhinolaryngology, University of Crete School of MedicineThe Usher Institute of Population Health Sciences and Informatics, The University of EdinburghUniversity of Sydney and Woolcock Emphysema Centre and Local Health District, Woolcock Institute of Medical ResearchDepartment of Allergy, Immunology and Respiratory Medicine, Alfred Hospital and Central Clinical School, Monash UniversityServicio de Alergia e Immunologia, Clinica Santa IsabelDirector of Center of Allergy, Immunology and Respiratory Diseases, Santa Fe, Argentina Center for Allergy and ImmunologyUniversidad Católica de CórdobaDepartment of Clinical Science and Education, Södersjukhuset, Karolinska InstitutetSachs’ Children and Youth Hospital, Södersjukhuset, Stockholm and Institute of Environmental Medicine, Karolinska InstitutetCentre for Clinical Research Sörmland, Uppsala UniversityUpper Airways Research Laboratory, ENT Dept, Ghent University HospitalEuforeaDepartment of Respiratory Medicine, Ghent University HospitalEFA European Federation of Allergy and Airways Diseases Patients’ AssociationsDepartment of Dermatology and Allergy Centre, Odense University Hospital, Odense Research Center for Anaphylaxis (ORCA)Department of Dermatology and Allergy Centre, Odense University Hospital, Odense Research Center for Anaphylaxis (ORCA)Department of Medicine, Clinical Immunology and Allergy, McMaster UniversityQuebec Heart and Lung Institute, Laval UniversityClinical Medecine, Laval’s UniversityMedecine Department, Hôpital de la MalbaieMedecine Department, Hôpital de la MalbaieDepartment of Health Research Methods, Evidence and Impact, Division of Immunology and Allergy, McMaster UniversityDepartment of Respiratory Medicine, University Hospital OlomoucDepartment of Respiratory Medicine, University Hospital OlomoucFaculty of Medicine, Transylvania UniversityDepartment of Allergy and Immunology, Hospital Quirón BizkaiaiQ4U Consultants LtdDivision of Allergy/Immunology, University of South FloridaSection of Allergy and Immunology, Saint Louis University School of MedicineClinical Reserch Center for Allergy and Rheumatology, Sagamihara National HospitalMedical Communications Consultant, MedScript Ltd (Ireland & New Zealand)Johns Hopkins School of MedicineDepartment of Otorhinolaryngology, Chiba University HospitalNova Southeastern UniversityAbstract Aims Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. Methods MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. Stakeholders Include patients, health care professionals (pharmacists and physicians), authorities, patient’s associations, private and public sectors. Results MASK is deployed in 23 countries and 17 languages. 26,000 users have registered. EU grants (2018) MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour). Lessons learnt (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.http://link.springer.com/article/10.1186/s13601-019-0252-0AppAsthmaCare pathwaysMASKmHealthRhinitis |