Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach

Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach

A lack of well-structured guideline or care pathway results in inadequate, inconsistent and fragmented palliative care (PC) for babies and their families. The impact on the families could be emotionally and psychologically distressing. Not all neonatal units have specialist PC clinicians or teams, a...

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Bibliographic Details
Main Authors: Narendra Aladangady, Abena N Akyempon
Format: Article
Language:English
Published: BMJ Publishing Group 2021-08-01
Series:BMJ Paediatrics Open
Online Access:https://bmjpaedsopen.bmj.com/content/5/1/e000820.full
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spelling doaj-2b79a7cbcb4b4ef4986c8efa1a01aeb32021-08-10T09:00:13ZengBMJ Publishing GroupBMJ Paediatrics Open2399-97722021-08-015110.1136/bmjpo-2020-000820Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approachNarendra Aladangady0Abena N Akyempon1Neonatology, Homerton University Hospital NHS Foundation Trust, London, UKNeonatology, Homerton University Hospital NHS Foundation Trust, London, UKA lack of well-structured guideline or care pathway results in inadequate, inconsistent and fragmented palliative care (PC) for babies and their families. The impact on the families could be emotionally and psychologically distressing. Not all neonatal units have specialist PC clinicians or teams, and such units will benefit from a well-planned perinatal PC pathway. In this article, we discuss a tertiary neonatal unit perinatal care pathway which provides guidance from the point of diagnosis and establishment of eligibility of a baby for PC through to care after death and bereavement support for families. Planning PC with families which encourages family-centred and individualised approach is also discussed.https://bmjpaedsopen.bmj.com/content/5/1/e000820.full
collection DOAJ
language English
format Article
sources DOAJ
author Narendra Aladangady
Abena N Akyempon
spellingShingle Narendra Aladangady
Abena N Akyempon
Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach
BMJ Paediatrics Open
author_facet Narendra Aladangady
Abena N Akyempon
author_sort Narendra Aladangady
title Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach
title_short Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach
title_full Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach
title_fullStr Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach
title_full_unstemmed Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach
title_sort neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach
publisher BMJ Publishing Group
series BMJ Paediatrics Open
issn 2399-9772
publishDate 2021-08-01
description A lack of well-structured guideline or care pathway results in inadequate, inconsistent and fragmented palliative care (PC) for babies and their families. The impact on the families could be emotionally and psychologically distressing. Not all neonatal units have specialist PC clinicians or teams, and such units will benefit from a well-planned perinatal PC pathway. In this article, we discuss a tertiary neonatal unit perinatal care pathway which provides guidance from the point of diagnosis and establishment of eligibility of a baby for PC through to care after death and bereavement support for families. Planning PC with families which encourages family-centred and individualised approach is also discussed.
url https://bmjpaedsopen.bmj.com/content/5/1/e000820.full
work_keys_str_mv AT narendraaladangady neonatalandperinatalpalliativecarepathwayatertiaryneonatalunitapproach
AT abenanakyempon neonatalandperinatalpalliativecarepathwayatertiaryneonatalunitapproach
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