VISIT-TS: A multimedia tool for population studies on tic disorders [version 2; referees: 2 approved]

Population-based assessment of Tourette syndrome (TS) and other tic disorders produces a paradox. On one hand, ideally diagnosis of tic disorders requires expert observation. In fact, diagnostic criteria for TS explicitly require expert assessment of tics for a definite diagnosis. On the other hand,...

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Bibliographic Details
Main Authors: M. Jonathan Vachon, Catherine W. Striley, Mollie R. Gordon, Miriam L. Schroeder, Emily C. Bihun, Jonathan M. Koller, Kevin J. Black
Format: Article
Language:English
Published: F1000 Research Ltd 2016-10-01
Series:F1000Research
Subjects:
Online Access:https://f1000research.com/articles/5-1518/v2
Description
Summary:Population-based assessment of Tourette syndrome (TS) and other tic disorders produces a paradox. On one hand, ideally diagnosis of tic disorders requires expert observation. In fact, diagnostic criteria for TS explicitly require expert assessment of tics for a definite diagnosis. On the other hand, large-scale population surveys with expert assessment of every subject are impracticable. True, several published studies have successfully used expert assessment to find tic prevalence in a representative population (e.g. all students in a school district). However, extending these studies to larger populations is daunting. We created a multimedia tool to demonstrate tics to a lay audience, discuss their defining and common attributes, and address features that differentiate tics from other movements and vocalizations. A first version was modified to improve clarity and to include a more diverse group in terms of age and ethnicity. The result is a tool intended for epidemiological research. It may also provide additional benefits, such as more representative minority recruitment for other TS studies and increased community awareness of TS.
ISSN:2046-1402