Stress and self-concept in parents of children with fragile X-syndrome / Estresse e autoconceito em pais e mães de crianças com a síndrome do X-frágil

• Main Authors: Zuleika Ana Cherubini, Cleonice Alves Bosa, Denise Ruschel Bandeira
• Format: Article
• Language: English
• Published: SpringerOpen 2008-01-01
• Series: Psicologia: Reflexão e Crítica
• Subjects: Fragile X Syndrome; Down Syndrome; parental stress; self-concept; social support
• Online Access: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0102-79722008000300009&lng=pt&nrm=iso&tlng=pt

The Fragile X Syndrome is the major inherited intellectual disability, superseded only by Down Syndrome, and it is transmitted mostly by females. Patients with Fragile X Syndrome show a set of physical, clinical, behavioral and cognitive features that may impact the family structures, especially the parental figures. This study investigates the stress and self-concept of 15 parents of boys with Fragile X Syndrome, 15 parents of boys with Down syndrome and 15 with typical development accordingly to the biopsychosocial model of Bradford. The results showed a significant difference of self-concept between mothers of children with Fragile X Syndrome and typical developmental groups, but not in those with Down Syndrome, suggesting that the transmission factor solely does not explain differences in self-concept.