Rural citizen-patient priorities for healthcare in British Columbia, Canada: findings from a mixed methods study

Abstract Background The challenge of including citizen-patient voices in healthcare planning is exacerbated in rural communities by regional variation in priorities and a historical lack of attention to rural healthcare needs. This paper aims to address this deficit by presenting findings from a mix...

Full description

Bibliographic Details
Main Authors: Jude Kornelsen, Christine Carthew, Kayla Míguez, Matilda Taylor, Catherine Bodroghy, Kathryn Petrunia, Delia Roberts
Format: Article
Language:English
Published: BMC 2021-09-01
Series:BMC Health Services Research
Subjects:
Online Access:https://doi.org/10.1186/s12913-021-06933-z
id doaj-1df85ac93e504f728226bf48c54e5ef7
record_format Article
spelling doaj-1df85ac93e504f728226bf48c54e5ef72021-09-19T11:10:46ZengBMCBMC Health Services Research1472-69632021-09-0121111210.1186/s12913-021-06933-zRural citizen-patient priorities for healthcare in British Columbia, Canada: findings from a mixed methods studyJude Kornelsen0Christine Carthew1Kayla Míguez2Matilda Taylor3Catherine Bodroghy4Kathryn Petrunia5Delia Roberts6Centre for Rural Health Research, Department of Family Practice, University of BritishCentre for Rural Health Research, Department of Family Practice, University of BritishCentre for Rural Health Research, Department of Family Practice, University of BritishRural Patient PartnerRural Patient PartnerRural Patient PartnerRural Patient PartnerAbstract Background The challenge of including citizen-patient voices in healthcare planning is exacerbated in rural communities by regional variation in priorities and a historical lack of attention to rural healthcare needs. This paper aims to address this deficit by presenting findings from a mixed methods study to understand rural patient and community priorities for healthcare. Methods We conducted a provincial survey of rural citizens-patients across British Columbia, Canada to understand their most pressing healthcare needs, supplemented by semi-structured interviews. Survey and interview participants were asked to articulate, in their own words, their communities’ most pressing healthcare needs, to explain the importance of these priorities to their communities, and to offer possible solutions to address these challenges. Open-text survey responses and interview data were analyzed thematically to elicit priorities of the data and their significance to answer the research questions. Results We received 1,287 survey responses from rural citizens-patients across BC, 1,158 of which were considered complete. We conducted nine telephone interviews with rural citizens-patients. Participants stressed the importance of local access to care, including emergency services, maternity care, seniors care, specialist services and mental health and substance use care. A lack of access to primary care services was the most pronounced gap. Inadequate local health services presented geographic, financial and social barriers to accessing care, led to feelings of vulnerability among rural patients, resulted in treatment avoidance, and deterred community growth. Conclusions Two essential prongs of an integration framework for the inclusion of citizen-patient voices in healthcare planning include merging patient priorities with population needs and system-embedded accountability for the inclusion of patient and community priorities.https://doi.org/10.1186/s12913-021-06933-zRural HealthPatient-Oriented ResearchCommunity ParticipationBritish Columbia
collection DOAJ
language English
format Article
sources DOAJ
author Jude Kornelsen
Christine Carthew
Kayla Míguez
Matilda Taylor
Catherine Bodroghy
Kathryn Petrunia
Delia Roberts
spellingShingle Jude Kornelsen
Christine Carthew
Kayla Míguez
Matilda Taylor
Catherine Bodroghy
Kathryn Petrunia
Delia Roberts
Rural citizen-patient priorities for healthcare in British Columbia, Canada: findings from a mixed methods study
BMC Health Services Research
Rural Health
Patient-Oriented Research
Community Participation
British Columbia
author_facet Jude Kornelsen
Christine Carthew
Kayla Míguez
Matilda Taylor
Catherine Bodroghy
Kathryn Petrunia
Delia Roberts
author_sort Jude Kornelsen
title Rural citizen-patient priorities for healthcare in British Columbia, Canada: findings from a mixed methods study
title_short Rural citizen-patient priorities for healthcare in British Columbia, Canada: findings from a mixed methods study
title_full Rural citizen-patient priorities for healthcare in British Columbia, Canada: findings from a mixed methods study
title_fullStr Rural citizen-patient priorities for healthcare in British Columbia, Canada: findings from a mixed methods study
title_full_unstemmed Rural citizen-patient priorities for healthcare in British Columbia, Canada: findings from a mixed methods study
title_sort rural citizen-patient priorities for healthcare in british columbia, canada: findings from a mixed methods study
publisher BMC
series BMC Health Services Research
issn 1472-6963
publishDate 2021-09-01
description Abstract Background The challenge of including citizen-patient voices in healthcare planning is exacerbated in rural communities by regional variation in priorities and a historical lack of attention to rural healthcare needs. This paper aims to address this deficit by presenting findings from a mixed methods study to understand rural patient and community priorities for healthcare. Methods We conducted a provincial survey of rural citizens-patients across British Columbia, Canada to understand their most pressing healthcare needs, supplemented by semi-structured interviews. Survey and interview participants were asked to articulate, in their own words, their communities’ most pressing healthcare needs, to explain the importance of these priorities to their communities, and to offer possible solutions to address these challenges. Open-text survey responses and interview data were analyzed thematically to elicit priorities of the data and their significance to answer the research questions. Results We received 1,287 survey responses from rural citizens-patients across BC, 1,158 of which were considered complete. We conducted nine telephone interviews with rural citizens-patients. Participants stressed the importance of local access to care, including emergency services, maternity care, seniors care, specialist services and mental health and substance use care. A lack of access to primary care services was the most pronounced gap. Inadequate local health services presented geographic, financial and social barriers to accessing care, led to feelings of vulnerability among rural patients, resulted in treatment avoidance, and deterred community growth. Conclusions Two essential prongs of an integration framework for the inclusion of citizen-patient voices in healthcare planning include merging patient priorities with population needs and system-embedded accountability for the inclusion of patient and community priorities.
topic Rural Health
Patient-Oriented Research
Community Participation
British Columbia
url https://doi.org/10.1186/s12913-021-06933-z
work_keys_str_mv AT judekornelsen ruralcitizenpatientprioritiesforhealthcareinbritishcolumbiacanadafindingsfromamixedmethodsstudy
AT christinecarthew ruralcitizenpatientprioritiesforhealthcareinbritishcolumbiacanadafindingsfromamixedmethodsstudy
AT kaylamiguez ruralcitizenpatientprioritiesforhealthcareinbritishcolumbiacanadafindingsfromamixedmethodsstudy
AT matildataylor ruralcitizenpatientprioritiesforhealthcareinbritishcolumbiacanadafindingsfromamixedmethodsstudy
AT catherinebodroghy ruralcitizenpatientprioritiesforhealthcareinbritishcolumbiacanadafindingsfromamixedmethodsstudy
AT kathrynpetrunia ruralcitizenpatientprioritiesforhealthcareinbritishcolumbiacanadafindingsfromamixedmethodsstudy
AT deliaroberts ruralcitizenpatientprioritiesforhealthcareinbritishcolumbiacanadafindingsfromamixedmethodsstudy
_version_ 1717375927203135488