Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain

Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain

Abstract Background The aim of this study was to determine the economic burden and health-related quality of life (HRQOL) of patients with Spinal Muscular Atrophy (SMA) and their caregivers in Spain. Methods This was a cross-sectional and retrospective study of patients diagnosed with SMA in Spain....

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Bibliographic Details
Main Authors: Julio López-Bastida, Luz María Peña-Longobardo, Isaac Aranda-Reneo, Eduardo Tizzano, Mark Sefton, Juan Oliva-Moreno
Format: Article
Language:English
Published: BMC 2017-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Spinal muscular atrophy
Cost-of-illness
Health-related quality of life
Economic burden
Spain
Online Access:http://link.springer.com/article/10.1186/s13023-017-0695-0

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