Exploring Dimensions of Empowerment from the Patients’ Perspective in One Specialist Epilepsy Service in Ireland

• Main Authors: Louise Bennett PhD, Michael Bergin PhD, John S G Wells PhD
• Format: Article
• Language: English
• Published: SAGE Publishing 2020-12-01
• Series: Journal of Patient Experience
• Online Access: https://doi.org/10.1177/2374373520948405

Empowerment is integral to patient-centered practice, particularly as this relates to people with chronic conditions, though operationally it is poorly understood in this context. Empowerment, therefore, as experienced by patients with a chronic condition needs exploration. This article reports the experience of empowerment by patients in one specialist epilepsy service in Ireland as an exemplar of broader issues affecting empowerment of patients with chronic conditions. A Frameworks Approach was used to analyze in-depth interviews with patients (n = 10) in one Irish epilepsy service. Analysis was further informed by nonparticipatory observation of service delivery. Results indicate that patients’ negative experiences of empowerment appear to be derived from traditional social norms relating to clinician patient power dimensions and social stigma internalized by clinicians at an unconscious level. With this in mind, educational approaches based upon critical social theory may provide a framework and guide to enable services to engage with these issues and embrace empowerment of patients with chronic conditions within therapeutic engagement.