“DLQI Seems to be ‘Action’, and Skindex-29 Seems to be ‘Emotion’”: Qualitative Study of the Perceptions of Patients with Psoriasis or Eczema on Two Common Dermatology-specific Quality of Life Measures

• Main Authors: Priyamvada Paudyal, Christian Apfelbacher, Christina Jones, Sanna Siddiqui, Aisha El-Turki, Claudia DeGiovanni, Helen Smith
• Format: Article
• Language: English
• Published: Society for Publication of Acta Dermato-Venereologica 2020-04-01
• Series: Acta Dermato-Venereologica
• Subjects: quality of life; dlqi; skindex-29; qualitative study; content validity; lived experience
• Online Access: https://www.medicaljournals.se/acta/content/html/10.2340/00015555-3417
• ISSN: 0001-5555; 1651-2057

Little is known about which quality of life measure best captures the lived experience of people with a chronic skin condition. The purpose of this study was to explore patients’ views on the Dermatology Life Quality Index (DLQI) and Skindex-29. Participants were adults (n = 28) with a diagnosis of eczema or psoriasis who completed the DLQI and the Skindex-29 before being interviewed about the content and format of these questionnaires. Interviews were analysed using content analysis. Participants were generally satisfied with length and layout of both questionnaires. However, the majority preferred the Skindex-29 for its ease of understanding, use of a longer recall period and incorporation of items on a variety of emotions. Participants reported both questionnaires failing to incorporate important aspects of their lives, for instance impact on professional relationships. Participants voiced limitations in both measures but overall felt Skindex-29 better captured their lived experience.